How old were you when you were first diagnosed?

[Frank]

I was diagnosed almost exactly 3 years ago when I was 70. I’d had double vision for a day and a half and went to the emergency room. first they did all the stroke protocols and determined I hadn’t had a stroke and then they did some M tests – – eyes on my eyes and an injection of pyridostigmine. When those had no results, they determined that I didn’t have MG but sent me to a stroke doctor. That doctor didn’t know why I’ve been sent there and sent me to my primary care physician. He ran a bunch of tests and determined. I had Anti-AChr MG and sent me to a fabulous neurologist.

So I was diagnosed within 30 days of my first visit to the emergency room.

My optical MG switch to general MG within a few months. I’ve not been hospitalized, though. I have had several flares.

The emergency room and the doctors I go to are all part of a wonderful teaching and research medical school and I have been very lucky to have them as my care providers.

I don’t think my age impacted the speed of my diagnosis. I think the nature and quality of my medical pro Were impacted the speed of my diagnosis. I wish everyone had a teaching and research hospital near them.

I wish all of us the best, stress-free, and fun holiday season. I love having you all in my life! Thank you.

[shawna-barnes]

Thanks for your contribution Frank! I agree about having a teaching hospital and a care team that is open. I use the VA, but they get interns and work closely with the Mayo Clinic. It’s a wonderful combination and I am lucky to have one helluva care team.

[June Robertson]

Seventeen. I had just had a hepatitis vaccine which was possibly the trigger. But I was in my first year at university and very stressed. I was diagnosed fairly quickly but it was a rollercoaster ride. Studied with one eye closed due to double vision, fell off my bike and couldn’t get up until the strength came back…a bus went around me and left me on the road. Often fell over on the campus and would be picked up by the gardener. People thought I was drunk. My speech was slurred. My friends in college would have to cut up my food, and when I got it up to my mouth I would choke. Liquid would come back through the nose because the palate was paralysed. Amanuensis for exams. I am now 80 and fairly well….due to thymectomy, homoeopathy, herbal medicine(I became a herbalist and massage therapist!) and careful marshalling of energy. Am so grateful, and so very sympathetic to those of you whose struggles I understand so well.

[cincy]

My first symptoms were in February 2022. Three optometrists and 1 ophthalmologist later I finally got fed up and called another ophthalmologist and was diagnosed in early September of this year. My body didn’t get the memo either about the norms for this. I’m a 75-year-old woman.

[chrismontour]

I was 12 back in 1972. Clinical diagnosis. They didn’t test for antibioties then.