Do you have refractory Myasthenia gravis or MG that is difficult to control with treatment?
Do you have refractory MG or MG that is difficult to control with treatment?
Refractory Myasthenia gravis (MG) does not have an exact definition and is not a “type of MG” necessarily. It is a term that refers to the broad group of individuals who experience MG symptoms that do not improve with steroids or immunosuppressants or experience too severe of side effects from them to continue use, relapses when weaning off of treatment, or recurrent MG crises even with treatment, https://myastheniagravisnews.com/news/refractory-myasthenia-gravis-poses-burden-u-s-healthcare-system/.
If you do have refractory MG, has either intravenous immunoglobulin (IVIG) or plasma exchange (PLEX), https://myastheniagravisnews.com/news/therapeutic-plasma-exchange-refractory-generalized-myasthenia-gravis/, led to improvement, even in the short term? Or has another treatment eventually worked for you?
Did you have a thymectomy? If so, did it lead to progress?
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