kenneth j. bialkowski replied to the topic Sports and MG in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 2 months, 2 weeks ago
I am 73 and have suffered from MG for 6 or 7 years. After 2 hospitalizations I had a course of Rituximab which worked wonders. Now on daily Prednisone and once weekly Cuvitru infusions. This combination has allowed me to return to sports. I a back playing USTA competitive tennis (for my age group) and can get through a 2 hour match. However, I am…[Read more]
kenneth j. bialkowski replied to the topic Anyone with experience with Rituximab infusions? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months, 2 weeks ago
I suffer from refractory MG and nothing seemed to work. I was hospitalized twice. I then had a series of Rituximab infusions. That was 3 years ago. It was like a miracle. With the help of 10 mg Prednisone daily and weekly Cuvitru infusions that I do at home I now live a pretty normal life. I am able to work and regularly play tennis and golf. i…[Read more]
kenneth j. bialkowski replied to the topic Chemotherapy and MG in the forum Healthcare and Myasthenia Gravis 8 months, 2 weeks ago
I had a course of Rituximab 4 years ago and have not had a crisis or hospitalization since. I have since remained stable with low dose Prednisone and weekly IVIG.
kenneth j. bialkowski replied to the topic The Vaccine: Experience & Side Effects in the forum Coronavirus (COVID-19) and Myasthenia Gravis 9 months, 2 weeks ago
I have had 4 Moderna vaccinations. Slight flu-like symptoms the following day but nothing significant. Level of MG symptoms (speech, swallowing) did not change. MG has been controlled with 10 mg Prednisone daily and weekly Cuvitru infusions of 190 ml. for the last several years.
kenneth j. bialkowski replied to the topic First Signs of MG in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 10 months, 2 weeks ago
My first symptoms and symptoms to this day involve speech and swallowing difficulties. Contolled for the past 3 years with low dose Prednisone and weekly Cuvitru sub-Q. The treatment doesn’t eliminate the symptoms but keeps them at a level where I can function.
kenneth j. bialkowski became a registered member 1 year, 2 months ago
Hello, Kenneth! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]