kenneth j. bialkowski

I am 73 and have suffered from MG for 6 or 7 years. After 2 hospitalizations I had a course of Rituximab which worked wonders. Now on daily Prednisone and once weekly Cuvitru infusions. This combination has allowed me to return to sports. I a back playing USTA competitive tennis (for my age group) and can get through a 2 hour match. However, I am…[Read more]

I suffer from refractory MG and nothing seemed to work. I was hospitalized twice. I then had a series of Rituximab infusions. That was 3 years ago. It was like a miracle. With the help of 10 mg Prednisone daily and weekly Cuvitru infusions that I do at home I now live a pretty normal life. I am able to work and regularly play tennis and golf.  i…[Read more]

I had a course of Rituximab 4 years ago and have not had a crisis or hospitalization since. I have since remained stable with low dose Prednisone and weekly IVIG.

I have had 4 Moderna vaccinations. Slight flu-like symptoms the following day but nothing significant. Level of MG symptoms (speech, swallowing) did not change. MG has been controlled with 10 mg Prednisone daily and weekly Cuvitru infusions of 190 ml. for the last several years.

My first symptoms and symptoms to this day involve speech and swallowing difficulties. Contolled for the past 3 years with low dose Prednisone and weekly Cuvitru sub-Q. The treatment doesn’t eliminate the symptoms but keeps them at a level where I can function.