Do you find it difficult to raise awareness for Myasthenia gravis?
Most of us diagnosed here were unfamiliar with Myasthenia gravis before our symptoms. So it is no surprise that explaining MG to others can be intimidating when it may still confuse us.
It may seem crazy not fully understanding a disease we live with. But, there is so much complexity and misunderstanding in the science world of how this disease works. And MG is very individualized, which confuses others and may even make them think we are clueless. We may think we understand MG well until someone asks us questions we may not know.
It is Myasthenia gravis awareness month, https://myastheniagravisnews.com/columns/what-do-when-myasthenia-gravis-awareness-month-over/. But spreading awareness can very understandably be scary!
Do you find it challenging or nerve-wracking to talk about Myasthenia gravis with others? Which parts are daunting?
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