I write about living with MG because I feel too much to keep it all inside

Anyone who knows me would completely agree that I am too talkative. It is not always easy for my entourage, but for me, it is necessary. If I keep everything inside, it drains me, and I can spend hours trapped in my thoughts, overthinking every step, questioning every decision, and reliving my reality again and again.

One of the ways I’ve learned to let things out is by writing them down.

I have already written about the power of journaling and the importance of advocating on social media. But I haven’t said anything about the immense relief I feel when I put my raw truth out into the world. Not a polished version. Not a controlled one. Just the truth as it is. There is something incredibly freeing about not filtering what you feel.

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I am not alone when I write

When I write my columns, I am not only sharing information or experiences about living with myasthenia gravis, I am also releasing something. I am taking the chaos inside my head and giving it shape, words, and meaning. And when those words reach someone, when someone answers, when someone says, “I feel the same,” it becomes more than writing. It becomes connection.

Receiving comments from readers, exchanging with them, reading their stories, their struggles, their reflections, feels like a balm. A real one. It soothes something inside me that I cannot always explain. It reminds me that I am not alone in this experience, and more importantly, that my voice can help someone else feel less alone, too.

Recently, I discovered another space that deepened this feeling: the Myasthenia Gravis News Forums.

Here is a place where people open up without filters. Where stories are shared without needing to be perfect, structured, or even hopeful. A place where people help each other face something that only those who live it can truly understand.

There is something powerful about reading someone describe a feeling you never managed to put into words. Something comforting about realizing that your struggles are not unique, even if they feel deeply personal. And something healing about being able to respond, to support, to give back, even in a small way.

Because sometimes, the only people who truly understand the weight of this disease are the ones who carry it too.

Speaking, writing, sharing, and responding are not just ways of communicating. They are ways of surviving. They are ways of processing something that cannot always be solved, only lived. For me, expressing myself is the door through which my pain leaves my body and enters the world.

And I think I finally understand why I need to express so much. It is not because I talk too much. It is because I feel too much to keep it inside.

Note: Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Myasthenia Gravis News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to myasthenia gravis.