Hobbies Keep Me Sane When Managing Chronic Illness

Shawna Barnes avatar

by Shawna Barnes |

Share this article:

Share article via email
plasma donations | Myasthenia Gravis News | banner image for

Hobbies can be a funny thing. It feels like some of us have many and could go broke supplying them, while others have no idea how to relax or do something for the sake of enjoyment. I personally have fallen into both categories at different points in my life.

When I was in the Army, I always talked about the things I wanted to do to destress. Rather than take the classes or make the things, I developed a sordid sense of humor as a coping mechanism. I’ve found that a similar sense of humor is common in the chronic illness communities, including myasthenia gravis (MG). Other than the warped humor, no hobbies took root.

Recommended Reading
myasthenic crisis | Myasthenia Gravis News | illustration of doctor with tablet

Risk Factors for MG Exacerbations, Myasthenic Crises ID’d in Study

Once I medically retired from the Army in 2011, I had all the time in the world to explore the hobbies I’d always been interested in, but I no longer had the health to do so. I chose to delve into my artistic side and learn graphic design. I tried going back to school but was unable to learn at the required pace. I had some cognitive decline and was no longer able to process new information quickly.

Is playing games considered a hobby? I’m not sure, but I took it up after I flunked three classes during the time doctors were investigating my mental faculties. I once read a study that found that Alzheimer’s patients who played brain games regularly were able to regain some of their memory and processing skills. I had nothing to lose and gave it a go. For a minimum of 30 minutes a day, I played various brain games on my phone.

In 2012, after my epic failure at trying to learn graphic design, I pursued clay work. First, I learned to throw on the pottery wheel and made functional items like plates, cups, and bowls. Then I started sculpting and absolutely loved it. It not only provided mental catharsis, but also functioned as physical therapy for some of my disabilities and gave me purpose during the day. Clay play for the win!

It took a few years, but I eventually realized that the brain games had been helping. I used to be a bookworm, but in addition to being unable to learn new things, I had trouble following along with books and retaining what I read. This happened even with books I was rereading. I missed this hobby. On a whim, I decided to start listening to audiobooks on my phone for background noise while I was sculpting.

Success never happens overnight, even if that appears to be the case with others. My reading journey was no different. One evening in 2014, I was listening to an audiobook. After supper, I told my husband about what I made that day and what happened in the book I’d been listening to. I remember stopping midway through our conversation and crying because I had actually remembered both.

Since then, I’ve also picked up crocheting again (my grandma taught me when I was 8), and I’ve recently decided to improve my drawing skills. My 3D skills are much better than my 2D skills. I may give digital sculpting a try to combine some skills I have and some I’d like to learn.

Hobbies are an important outlet for anyone, not just those with chronic illnesses like MG. They give us a purpose, something to do, and opportunities to meet others with similar interests.

For me, I have found that having a space where I can comfortably practice my hobbies is critical for my emotional and mental health. It’s one reason I spent 10 days getting my studio/office squared away after our recent move to Wisconsin. (It’s currently the only room in the house that’s done!)

What hobbies do you enjoy? What adaptations, if any, have you made so you can continue to do them? Please share in the comments below.


Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Comments

Heather Kaye avatar

Heather Kaye

You sound a very positive person.Keep on enjoying your life.Enjoy the things you CAN do and ,most of the things we all worry about never actully happen !
Keep on crotcheting.
Kind regards

Reply
Shawna Barnes avatar

Shawna Barnes

Thanks Heather! I do my best to maintain a positive outlook on life. If given the choice of being breathless from crying or laughing, I will choose laughter every day.

Reply
Kay Burroughs avatar

Kay Burroughs

I train and show my dogs in obedience and rally. It’s a great hobby and has been my passion for many years, even before I was diagnosed with MG. The most wonderful thing is the relationship I have with my dogs. My second hobby is photography and I take l”lots of photos of my dogs, of course!! I just retired from my job of 43 years so I’m looking forward to doing more of both of my hobbies!! Best of luck to you and ai hope you continue to enjoy your hobbies!!

Reply
Shawna Barnes avatar

Shawna Barnes

That sounds wonderful Kay! We have two dogs here, one of of which is my service dog. I take lots of pictures of them as well. I enjoy photo restoration and may get back into it.

Reply
orna mundschine avatar

orna mundschine

My husband who has myasthenia found gardening a very satisfying hobby and that helps him to have a positive attitude towards his illness and life. Waiting for the flowers and the vegetables makes him happy and fells the joy of achievement.

Reply
Donna McCauley avatar

Donna McCauley

I was encouraged with these letters. I've been under more stress d/t my elderlly father. My memory has been really bad. I do have quilting hobby, but i see i should do more brain games. I was a very active person, how do i get myself to slow down. I've been trying, but i always find myself doing it anyway" HELP!

Reply

Leave a comment

Fill in the required fields to post. Your email address will not be published.

2021 Myasthenia Gravis Survey Results

BioNews Survey Infographic

Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.