My challenges in life due to MG are causing some pre-marriage jitters

In less than 30 days, I’ll be getting married and moving in with my future husband, the love of my life, who has lived through every stage of myasthenia gravis (MG) with me, from my diagnosis in 2018 to the grieving journey I am still going through today. But since we’ve never lived under the same roof, frankly, I’m terrified.

I admire his patience and the way he reacts when I’m distressed by the exhaustion and pain caused by MG. He is always there, smiling and patiently waiting for my instructions, while offering his hand to help with anything. But this has always happened in the short periods we spend together outside our family homes. Like many couples in Algeria, we follow traditions and still live with our parents, moving out once we’re married. So what will happen when it’s just the two of us, alone between four walls?

I’m scared he’ll realize that this is much more than he expected. I’m scared I’ll get angry from exhaustion and hurt someone who has saved me from the sadness of feeling misunderstood so often. I’m scared he’ll be tired at the end of the day and suggest ordering food instead of cooking, and I’ll somehow interpret it as him not wanting to help me peel vegetables, because, of course, I’m the better cook and will take care of this part. (I’m joking.)

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There is also the new experience of running a household, which feels intimidating. I have no idea how I’ll manage groceries, cooking, and housework, especially now that I’ve paused working out and walking because my legs feel weak and my body seems to be asking for rest. I’ve stopped being physically active, and I wonder how I’ll handle all of these new responsibilities. Thank God I won’t be alone, but I feel sorry for him!

Speaking of being sorry, I have an uncomfortable feeling that he is sacrificing a normal life to be with me. I keep reminding myself that he could have fallen in love with someone lazy or someone with another illness, but he chose me, and that makes me feel bad.

Because I treat MG as a bitter best friend, I expected it to come between us. But I’m happy to say that it has rarely been an obstacle in our relationship. From the beginning, he made sure I was comfortable sharing how I felt and asking for what I needed. I had to learn to ask for help and be transparent about my condition. Somehow, that honesty brought us closer.

But I’m fighting not to let my fear of the future destroy what we’ve already established. A couple living with MG isn’t fundamentally different from any other couple. Every relationship has its own challenges, fears, and adjustments. We all have to communicate, learn about each other, and put in the effort to make things work.

I’ll do my best to stay organized, take care of myself, and avoid pushing my body beyond its limits. And if a flare-up happens, I’ll do my best to accept that I need rest and to allow myself the time to recover.

I don’t know exactly what married life will look like for us. Maybe we’ll have difficult days, misunderstand each other, or discover challenges we never anticipated. But I also know that we’ve already built something beautiful alongside MG. I want to trust in that, instead of letting my fears write a story that hasn’t happened yet.

Note: Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Myasthenia Gravis News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to myasthenia gravis.