Columns

Can living with myasthenia gravis have benefits?

Some people think disabilities are just excuses and free-pass cards that come with countless advantages. After a recent experience, I’ve realized they might be right sometimes — but not in the way they think. Before you think I’m crazy, let me explain. I’m not talking about financial aid or priority…

Living with MG can feel isolating at times, but we’re not alone

Note: This column describes the author’s own experiences with several medications, including Ultomiris (ravulizumab-cwvz). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Ecclesiastes 3:15 (KJV) reads in part, “That which hath been is now; and that which is to…

Myasthenia gravis brings into focus what is essential in our lives

Published in 1759, Voltaire’s satirical novella “Candide” follows the adventures of its protagonist as he travels the world. Along the way, Candide encounters the suffering, misfortune, and ambiguity that is characteristic of human life. A college philosophy course was my introduction to this masterpiece. I can visualize myself walking across…

The unexpected perks of living with chronic illness

Living with a chronic illness like myasthenia gravis (MG) is no walk in the park. Sometimes I roll. Some days, just getting out of bed feels like a herculean task worthy of a medal. Yet among the challenges that come with living with MG, I’ve discovered some unexpected…