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Navigating the emotional ups and downs of life with MG

There’s no denying it: Living with myasthenia gravis (MG) can make a person feel insane. One minute I’m celebrating a new physical milestone achieved, and the next I’m lamenting and grieving how much I lost when I got sick. It’s these constant emotional ups and downs that make…

Coping with myasthenia gravis meant staying silent

“Silence is a true friend who never betrays,” Confucius once said. There is so much modern science doesn’t know about myasthenia gravis (MG). It must be taxing and frustrating for people with MG to explain the disease and its symptoms to family, friends, and others who may have…

How I’m facing my fears in life with a rare disease

Last year, I woke up to terrible news: One of my colleagues had passed away. Although I didn’t know her personally, I knew she’d lived with a chronic illness and was an advocate for those with her condition. Her death was sudden and unpredictable, and I felt numb and choked.