Columns

Last week, I was asked to respond to “Tell me about yourself” as it related to my disabilities and the help I needed around the house. The request came during an intake meeting to have an outside caregiving company come in to help my husband and me. Even though I…

I live in a little community in northwestern Wisconsin that boasts fewer than 1,000 year-round residents. This fluctuates greatly during the winter and summer tourist seasons. I had concerns about living in such a rural area when my husband and I decided to move from Maine…

Columnist Shawna Barnes discusses air hunger with MG, its causes, how it differs from other shortness of breath, and strategies for managing this symptom.

Would you, could you, on the floor? I could not, would not, on the floor. I will not do it before four. I will not do it in the chair. I simply cannot on a dare … No, I’m not taking a beloved childhood story about ham and eggs that…

Take away any religious connections, and the period from the end of November through the start of January is still the most festive time of the year. Decorating our homes, hosting and attending holiday gatherings, and giving gifts are some activities that make the season enjoyable. But they can also…

Fear. Whether it stems from uncertainty over myasthenia gravis (MG), a lack of support from friends and family, the risk of losing an occupation or vocation, or possible disease flare-ups, living with fear seems to be common in our community, regardless of MG type or severity. And…

Every December, I perform a painful yet cathartic ritual: I find a quiet time free of intrusions and, with a glass of killer eggnog, sit down to listen to the musical “Les Misérables.” While doing so, I’ll recall events that occurred more than 30 years ago, which brings on…

How well do you really know your partner? Do you know their food or medication allergies? How about their favorite color? Can you rattle off the things that drive them nuts, both in a good and bad way? If they regularly take medications, do you know which ones? If…

Thanksgiving is a time to celebrate the past year’s blessings. It’s also a time to express gratitude for the people and things that make our lives meaningful and joyful. However, for some people, Thanksgiving can be a difficult and painful occasion. Those with chronic illnesses may feel isolated, depressed, or…

“How do you do it?” I’m asked this question a lot by friends, family, and even new acquaintances. I have myasthenia gravis (MG), so the topic usually comes up in conversation. After small talk, I’ll often end up explaining MG and how it affects me. The question usually follows…