Columns

How I’m facing my fears in life with a rare disease

Last year, I woke up to terrible news: One of my colleagues had passed away. Although I didn’t know her personally, I knew she’d lived with a chronic illness and was an advocate for those with her condition. Her death was sudden and unpredictable, and I felt numb and choked.

Learning how what I eat can fuel my body’s response

Six months can feel like forever. Using an elimination diet to detect food sensitivities can seem to last forever. Many such diets are restrictive at the start, which makes them difficult to stick with for long periods of time. But that’s sort of the point. In May, I started…

The subtlety of my MG symptoms made diagnosis a challenge

If you’ve read my diagnosis story, you know it took me a decade to find out I have myasthenia gravis (MG). But why? Didn’t I see professionals? I did. Weren’t they familiar with MG? They were. Were my symptoms unclear? Absolutely, or this journey wouldn’t have been so…

My twin with MG doesn’t want people to pity him

Author Jane Austen once wrote, “Those who do not complain are never pitied.” I was a mediocre English major in college. I won’t tell you I adored “Pride and Prejudice,” but I’ve always remembered that gut-wrenching line. To pity someone is to feel sorrow, compassion, and sadness due to their…