Jodi Enders,  —

Hi there! I am ecstatic you are here, uniting with our community at Myasthenia Gravis News. My name is Jodi Enders (she/her), and I am one of the forum moderators for Myasthenia Gravis News. I am an artist and anthropologist residing in Florida, where I enjoy fossil hunting and paddling with manatees in the springs. I trust that my anthropological specialties in cultural sensitivity, providing resources to marginalized individuals, and engaging digital communities will enhance the perspectives and struggles of those living with MG. Since being diagnosed with MG in August 2020 when I was 21 years old, I have gained new views, compassion, and mindfulness that I enjoy sharing with a global audience. I am pleased to have the opportunity to supervise this forum because I am eager at the chance to advocate for the rare disease community. I hope to give back to the MG community that helped me stay encouraged during my first few months with MG and navigating my last semester at USF.

Articles by Jodi Enders

Living in a World Where Many Undermine Public Health

Living amid a pandemic can and should be alarming to everyone. However, not everyone understands how individual actions can affect others. Therefore, people with compromised immune systems, such as those of us with myasthenia gravis, may be more susceptible to heightened levels of anxiety and frustration toward those not…

Resting and Resetting With Positive Intention

There is no shame in spending time on something that didn’t work out the way we had planned, regardless of how long we spent on it. At some point, those of us with myasthenia gravis (MG) will probably endure periods of forced rest, our plans won’t play out as…

Healthy Caregiver Relationships Can Be Imperfect

Throughout my thymectomy recovery, I am learning that we need to accept help when we need it, even if our lives aren’t precisely what we’d imagined. Consider that we want to keep growing into the most whole version of our potential selves. In that case, we have to…

Releasing Harsh Self-judgment and Embracing My Scars

It’s a lot more difficult agreeing to a scar than receiving one by accident. We often become comfortable with ourselves over time, and not knowing what we will look like post-surgery can be scary. We may worry how the physical changes will impact our lives and our interactions with…

If You Are Scared but Act Anyway, You Are Courageous

I am currently composing this column six hours out from my transsternal thymectomy. Five mishaps leading up to the surgery have gone wrong on the scheduling side, and then the COVID-19 office lost my test. I have been relatively happy leading up to this, but it seems everything…

Like Snowflakes, We Expand With Each Cloud

Snowflakes never meant much to me. As a kid, I would catch them in my mouth as they fell from the sky and cut their shapes out of construction paper. Now, after my myasthenia gravis (MG) diagnosis, I look at snowflakes with a newfound admiration and wonder. A miraculous…

We Must Always Remember to Practice Self-care

In friendly relationships, I always try to remain compassionate and remember that people’s past encounters and experiences shape who they are. In order to grow, people need to be open-minded and teachable. In certain uncomfortable situations, I let unintentional offenses slide, I attempt to teach, and I move on…