I might have been dealt an unlucky hand in terms of my general health, but I believe I was the luckiest of all when it came to assigning significant others. I am blessed beyond measure with Tom, who is caring, sweet, and understanding.
People can show they care in many ways, but the following examples are simple things that are among my favorites.
When someone is in the hospital as often as I was, people tend to expect that we get used to it. They believe we should adapt and that “it can’t be that bad anymore.” While they are right — the experience is far less intimidating over time compared with the first few admissions — it remains an all-around unpleasant experience. In all our years together, Tom has always come to visit me in the hospital with flowers or a gift, even if I was only in for two days. This made me feel like he acknowledged the inconvenience these hospital stays were imposing on my life.
He knew I was used to going to the hospital, but that I would never be used to staying behind after visiting hours were over. If he was traveling while I was admitted, he always made sure someone was at my bedside to keep me company. I never said it aloud, but the thought of hospital stays still scares me to the bone. So many things could potentially go wrong. Tom never questioned my anxiety; he just supported me through it.
Something as small as motivational messages can also make the biggest difference in one’s will to keep fighting. It’s nice to know someone is cheering you on, even when they’re not with you. Once I needed to get my driver’s license renewed, but the system was lagging and it was taking hours. My body became more uncomfortable and weaker with each passing minute. I almost decided to get up and leave, but Tom sent me a string of motivational messages, affirming his belief in me but also acknowledging the limits my body creates.
He knew it wasn’t purely a situation of mind over matter. It was a matter of my body having to do something it would not normally be able to do. Of course, I slept for hours as soon as I made it out of that office, but I left having accomplished what I went there to do. I gathered strength from that. Sometimes it’s nice to know that someone else understands and wants you to succeed — no matter how small the victory might seem to a healthy individual.
The last thing I will mention is that he always carries my load. I can be carrying anything from an overly heavy trunk to a small backpack that wouldn’t be a problem for most people and he will always take it from me. It doesn’t matter if he’s already carrying three bags, he’ll carry mine, too. He always says, “It’s not as difficult for me,” in a manner that makes it seem so obvious. I sometimes wonder why other people don’t understand my limitations as well as he does.
He even automatically gives me an arm for support when we approach stairs or to pull me up from a sitting position. These things just show me that he understands how difficult even the simplest of things can be for someone living with MG.
All of these things were born from adequate communication. At some point during our time together, I likely said I found certain things difficult, and he has found ways to help. These things took months to form, but they eventually became habits that both made my life easier and showed me how much he cares for me.
You deserve someone who makes you see how beautiful life is. Never stop fighting.
Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.