‘I’m not ignoring you’ (bulbar symptom edition)
I’m not ignoring you. I’m just ignoring the chance to talk to you on the phone. Cue phone ringing beside me. I look at caller ID and identify that it’s not an emergency. *send…
The Whispered Roar
— Shawna Barnes
Shawna N.M. Barnes is a writer, accessible website designer, and disabled veteran living in Cable, Wisconsin, with her husband. She was diagnosed with seronegative generalized myasthenia gravis (MG) in 2018 after seven years of advocating for herself within the VA’s medical system. She hopes that through her transparency, bluntness, and no-nonsense way of writing about life with her disease that she can help others see that there is hope after an MG diagnosis. Sometimes, we just have to get out of our own way to live our best lives.
Featured Post
With MG, even getting a pedicure requires careful consideration
During a recent weekend, I did something special: I took my son’s girlfriend out for her very first pedicure as a birthday present. It was a treat for her — and for me. It…
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