Together, facing the challenge of a myasthenia gravis diagnosis

Mohammed Hanafi and Sarah Bendiff, seen here at a shooting range in Algeria, where they live, have together learned how to adapt to life with MG. (Photo courtesy of Sarah Bendiff)

Note: Mohammed Hanafi’s girlfriend Sarah Bendiff is a Myasthenia Gravis News columnist who writes about her journey with MG. 

This is Mohammed Hanafi’s story:

At the beginning of our relationship, we still didn’t know what Sarah’s illness was. When the diagnosis of myasthenia gravis (MG) finally came, it was both a relief and a shock for both of us. At last, we had an explanation for all the strange and difficult symptoms she had been experiencing.

I had already prepared myself mentally for something serious. I knew we would have to make compromises, especially given all the symptoms she had already shown. But knowing that it was MG gave us more clarity about our limits — what we could do, what we couldn’t do, together. It gave us a starting point to adjust our plans and dreams accordingly.

At that time, we were both still at university. Sarah was struggling physically more and more to keep up with her studies. That slowly started to weigh on us. On my side, I felt it was my responsibility to support her, both mentally and physically. I took on new habits to make things easier for her: I carried her backpack, and we started walking less and taking breaks more often. I’d try to bring her something sweet to avoid dizziness, and I reminded her to take her medication.

Even though it wasn’t always easy, I think that period brought us closer. We had to learn to support each other differently — to communicate better, to pay attention to small signs. Sometimes I felt helpless watching her in pain or exhausted, but I realized that just being there made a difference. These kinds of experiences force you to grow, to shift your priorities, and to deepen your bond with someone.

Now, after several years, we manage this part of our life much better. We know when to take breaks during walks, and we use Uber as often as possible to avoid physical strain. I also try to listen carefully and not pressure her into resting unless she feels the need to do so — so she doesn’t feel too limited or defined by illness. It’s important to protect some sense of normalcy for her.

Today, we’ve adapted our lifestyle and future plans to include MG, and we’re ready to face the challenges ahead — together.

In recognition of Myasthenia Gravis Awareness Month in June, the Myasthenia Gravis Community Spotlight campaign features a series of stories highlighting the real-life experiences of people affected by myasthenia gravis, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MGSpotlight, or read the full series here.