Healthy Caregiver Relationships Can Be Imperfect
Throughout my thymectomy recovery, I am learning that we need to accept help when we need it, even if our lives aren’t precisely what we’d imagined. Consider that we want to keep…
Obstacles Can Excite Creativity — Jodi Enders
Jodi resides in Florida, where she loves to fossil hunt and paddle with manatees in the springs. Jodi hopes to enhance the perspectives and struggles of those living with MG through her anthropological specialties in cultural sensitivity, and by providing resources to marginalized individuals while engaging digital communities. Jodi aims to share lived experiences with MG to help spread compassion and mindfulness globally. Jodi also works as a forum moderator for this site.
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Nature Restores the Energy That Myasthenia Gravis Depletes
Birds twitter. Tall grasses dance in the wind. Alligators stare intently from the far bank of the creek. I’m in a corner of the earth that helps me escape from all the worries on…
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Releasing Harsh Self-judgment and Embracing My Scars
It’s a lot more difficult agreeing to a scar than receiving one by accident. We often become comfortable with ourselves over time, and not knowing what we will look like post-surgery can be…
If You Are Scared but Act Anyway, You Are Courageous
I am currently composing this column six hours out from my transsternal thymectomy. Five mishaps leading up to the surgery have gone wrong on the scheduling side, and then the COVID-19 office…
Like Snowflakes, We Expand With Each Cloud
Snowflakes never meant much to me. As a kid, I would catch them in my mouth as they fell from the sky and cut their shapes out of construction paper. Now, after my myasthenia…
We Must Always Remember to Practice Self-care
In friendly relationships, I always try to remain compassionate and remember that people’s past encounters and experiences shape who they are. In order to grow, people need to be open-minded and teachable. In…
Cheerfulness Can Be Sustained by Allowing Our Outlook to Evolve
It is entirely typical not to feel fearless during health tribulations. I am confident in my decision to have a thymectomy in a few short weeks. Nevertheless, I am incredibly anxious and…
Seek Possibilities for Growth: Welcome to ‘Obstacles Can Excite Creativity’
At the end of last June, I began experiencing a health crisis provoked by hydroxychloroquine. I was diagnosed with myasthenia gravis (MG) in the emergency room after a month of worsening symptoms, including double…
