What was your job before MG?

[Robert Richardson]

3 years into struggling to identify what was going on, I was finally diagnosed in 2016 at 56 yrs old, while performing as Manager in a large aerospace manufacturing plant.

My employer accommodates my relatively few needs, but there’s nothing I do in this industry where the potential cost of my mistakes is too great, and this prompted my “long term disability”.

[Sharon Haw]

Public Relations Director managing teams at large utility corporations and government including crisis communications, issues management, internal communications and customer communications. My brain fog, fatigue and loss of my former high energy led me to retire 3 years after diagnosis. Although my employer never asked me to leave, they did assign me to a special project with fewer demands. They were happy to see me go because I wasn’t as sharp as I used to be. MG didn’t affect my attendance but the job demanded quick insightful decisions and MG meant that peak performance was gone. Those last 3 years at work with MG were embarrassing and demoralizing. I’m still struggling to recover my lost confidence in my abilities. I’ve gathered a team to help me – psychologist, physiotherapist, personal trainer, foot care nurse, neurologist, family doctor and supportive family and friends. Recovery is slow.

[Amy Cessina]

I was a scientist but was laid off in 2020 and took a job as a program manager. Work 40 hours a week. No change to working keeps me level.

[jester]

I was retired when I was diagnosed with MG. But had settled in to a very nice volunteer position at a large museum. I loved the work.

Now I find my overall weakness and especially my weak voice have made me take a leave of absence. I’ve had a session of plasmapheresis and I’m just starting IvIG.

Hoping to return soon.

[paul spychalski]

Hope it works for you.

[Kate]

I had been in graduate school was an educator counselor but changed my direction to library grad school and working as a librarian with a specialty in cataloging special materials. I learned I had MG about 5 years into that job and within five years I had a significant health crisis and was hospitalized for months and could not return to my work position, I was classified as disabled with a traumatic brain injury. I am now 12 years in recovery, I have done well in rehab until the Covid pandemic years hit, the isolation was difficult, I’m still trying to recover a healthy routine. Thanks for listening best wishes to all who are trying to get stronger and find healthy routines.

[Barry]

I was and still work as a computer consultant. I have transitioned to doing mostly remote help. I was “out of commission” for almost a year recovering from a Myasthenia Crisis. I have to pace myself and nap if needed during the day.

[DD]

The brain fog is REAL. I’m still at the same job at a University, but my mental acuity and cognitive functioning are not there some days. It’s demoralizing and frustrating. On some days, I’m just not able to problem solve analytically or communicate effectively. I work remotely which helps with fatigue on days I need to take short naps to recharge, but it’s still a struggle cognitively some days.