-
What was your job before MG?
What was your occupation before MG? Did you have to leave that job or field of work after your diagnosis? If so, how soon after your MG diagnosis did you have to find a new job or stop working? -
10 Replies
-
3 years into struggling to identify what was going on, I was finally diagnosed in 2016 at 56 yrs old, while performing as Manager in a large aerospace manufacturing plant.
My employer accommodates my relatively few needs, but there’s nothing I do in this industry where the potential cost of my mistakes is too great, and this prompted my “long term disability”.
-
Public Relations Director managing teams at large utility corporations and government including crisis communications, issues management, internal communications and customer communications. My brain fog, fatigue and loss of my former high energy led me to retire 3 years after diagnosis. Although my employer never asked me to leave, they did assign me to a special project with fewer demands. They were happy to see me go because I wasn’t as sharp as I used to be. MG didn’t affect my attendance but the job demanded quick insightful decisions and MG meant that peak performance was gone. Those last 3 years at work with MG were embarrassing and demoralizing. I’m still struggling to recover my lost confidence in my abilities. I’ve gathered a team to help me – psychologist, physiotherapist, personal trainer, foot care nurse, neurologist, family doctor and supportive family and friends. Recovery is slow.
-
I was a scientist but was laid off in 2020 and took a job as a program manager. Work 40 hours a week. No change to working keeps me level.
-
I was retired when I was diagnosed with MG. But had settled in to a very nice volunteer position at a large museum. I loved the work.
Now I find my overall weakness and especially my weak voice have made me take a leave of absence. I’ve had a session of plasmapheresis and I’m just starting IvIG.
Hoping to return soon.
-
Hope it works for you.
-
-
I had been in graduate school was an educator counselor but changed my direction to library grad school and working as a librarian with a specialty in cataloging special materials. I learned I had MG about 5 years into that job and within five years I had a significant health crisis and was hospitalized for months and could not return to my work position, I was classified as disabled with a traumatic brain injury. I am now 12 years in recovery, I have done well in rehab until the Covid pandemic years hit, the isolation was difficult, I’m still trying to recover a healthy routine. Thanks for listening best wishes to all who are trying to get stronger and find healthy routines.
-
I was and still work as a computer consultant. I have transitioned to doing mostly remote help. I was “out of commission” for almost a year recovering from a Myasthenia Crisis. I have to pace myself and nap if needed during the day.
-
The brain fog is REAL. I’m still at the same job at a University, but my mental acuity and cognitive functioning are not there some days. It’s demoralizing and frustrating. On some days, I’m just not able to problem solve analytically or communicate effectively. I work remotely which helps with fatigue on days I need to take short naps to recharge, but it’s still a struggle cognitively some days.
-
Thank you for sharing so others can relate. Having those same symptoms as a nurse was terrifying. I am no longer working as a result of many symptoms. Good luck to you. One day at a time.
-
-
I studied in the mornings, spent the afternoon with my family, and in the evenings I worked as a programmer, working from home, until the wee hours of the night under great pressure.
I ate in an unbalanced way, mainly fast food, I didn’t drink water, only sweet drinks, I didn’t exercise, in short, a perfect environment for the development of diseases…
I believe this is the main cause of the onset of myasthenia gravis about a decade ago, from which I still suffer.
I received IvIg, and on the third day (out of five) of treatment, I had symptoms of meningitis and was rushed to the hospital at night and released home a few hours later. I underwent plasmapheresis, which gave me a lot of relief, and immediately after that I went back to increasing the steroids. Mestinon just made me salivate a lot and nothing more.
I’m considering testing the effect of Huperzine A on me, I’ve heard good things about it.
Wishing everyone a full recovery!
Log in to reply.