Viewing 2 reply threads
  • Author
    • #19286
      Michelle Gonzaba

        My neurologist has asked me to participate in clinical trials twice-once for a new medication and another for a thymectomy. 

        After much thought, I said no to both. I didn’t want to take a chance of not receiving treatments even though I know how incredibly important trials are. They were not decisions I made lightly. It’s a very personal decision and you have to do what’s best for you.

        Have you ever said “no” to a clinical trial? How did it make you feel?

      • #19291
        Lisa Blutman

          I am fairly stable on my mgmeds.  I have been asked to participate in others and always say no as i dont want to end up back in the hospital with a crisis.

        • #19292
          Thomas Lee Clark

            This is the same reason I did not take the “JAB”. I  take anti-coagulants and Clotting problems are suspected with the Jab. The kidney guy tells me not to receive dyes for xray. I am not fearing death but I would rather die than experience general MG again.  I was positive for covid and lived. The complication remaining, is my teeth itch and their is a twitch in my eyebrow.

        Viewing 2 reply threads
        • You must be logged in to reply to this topic.

        ©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

        CONTACT US

        We're not around right now. But you can send us an email and we'll get back to you, asap.


        Log in with your credentials


        Forgot your details?

        Create Account