Lisa Blutman

I had evusheld on recommendation fromy neurologist and primary car when I participated in a study and found I produced no antibodies from the Covid vaccines.  I take celcept and mestinon to manage my mg and am considered stable.  No reactions were observed or felt.  My next dose is November.  You get it every six months.  I follow up with the Covi…[Read more]

Hi:  when diagnosed with occular, my neurologist immediatly put me on mestinon.  I ended up with general layer that is totally undercontrol when adding celcept.  You need to see a good neurologist who will work with you.

All doctors and patients must decide upon the correct course of treatment for their MG care. It was high-dose steroids that put me in a crisis where I suffered respiratory failure and kept me in the hospital for a month. This was followed by 5 days of IVIG and two subsequent treatments of 3 days of IVIG. I currently take mestinon and cellcept…[Read more]

I am fairly stable on my mgmeds.  I have been asked to participate in others and always say no as i dont want to end up back in the hospital with a crisis.

My neurologist had me drink a small amount of quinine water when i had the muscle fasciculations.  I take 60 mg od mestnon 4 times per day along with 1000 mg of celcept twice per day.  I am no longer having any issues and am stable.

It is an interesting disease. My first sign was my left eyelid. Since then I had an MG crisis and stopped breathing on them (I was in the hospital for another reason). I take Pyridostigmine 120 mg 4 times per day and CellCept 1000 mg. twice per day. I also had an eyelid lift that my insurance company paid for as the ptosis affected both eyes.…[Read more]

Hi: I had 3 shots of Pfizer and one Moderna (totalling 4). I got my fourth as my health plan recommended it. I participated in a study through Stanford and two weeks before my fourth, I showed zero antibodies. The worst reaction I had was tiredness, but then I am always tired.

I have requested it as after 4 COVID vaccines I still have zero antibodies. I am meeting with my family practitioner on the fifth of April to discuss this. My neurologist sees nothing wrong with it.

I have had 3 Pfizer shots.  My arm, neck and back were sore with tiredness for my second.  6 months later I had my third with arm soreness and tiredness only for my third.

I am doing accupuncture for joint pain due to osteoarthritis in my knees.  I had had a joint replacement prior to my diagnosis of mg and it looks like the other knee is ready.  My pain is managed by accupuncture.