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Lisa Blutman replied to the topic Evusheld in the forum Coronavirus (COVID-19) and Myasthenia Gravis 9 months, 1 week ago
I had evusheld on recommendation fromy neurologist and primary car when I participated in a study and found I produced no antibodies from the Covid vaccines. I take celcept and mestinon to manage my mg and am considered stable. No reactions were observed or felt. My next dose is November. You get it every six months. I follow up with the Covi…[Read more]
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Lisa Blutman replied to the topic Probiotics for MG in the forum Nutrition, Supplements, and Exercise 11 months, 1 week ago
Hi: when diagnosed with occular, my neurologist immediatly put me on mestinon. I ended up with general layer that is totally undercontrol when adding celcept. You need to see a good neurologist who will work with you.
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Lisa Blutman replied to the topic High Dose Steroids after IVIG? in the forum Healthcare and Myasthenia Gravis 11 months, 3 weeks ago
All doctors and patients must decide upon the correct course of treatment for their MG care. It was high-dose steroids that put me in a crisis where I suffered respiratory failure and kept me in the hospital for a month. This was followed by 5 days of IVIG and two subsequent treatments of 3 days of IVIG. I currently take mestinon and cellcept…[Read more]
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Lisa Blutman replied to the topic Saying No to Participating in Clinical Trials in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 11 months, 4 weeks ago
I am fairly stable on my mgmeds. I have been asked to participate in others and always say no as i dont want to end up back in the hospital with a crisis.
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Lisa Blutman replied to the topic Mestinon Side Effects in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year ago
My neurologist had me drink a small amount of quinine water when i had the muscle fasciculations. I take 60 mg od mestnon 4 times per day along with 1000 mg of celcept twice per day. I am no longer having any issues and am stable.
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Lisa Blutman replied to the topic New To Diagnosis and at a loss as to how to handle. in the forum Healthcare and Myasthenia Gravis 1 year, 1 month ago
It is an interesting disease. My first sign was my left eyelid. Since then I had an MG crisis and stopped breathing on them (I was in the hospital for another reason). I take Pyridostigmine 120 mg 4 times per day and CellCept 1000 mg. twice per day. I also had an eyelid lift that my insurance company paid for as the ptosis affected both eyes.…[Read more]
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Lisa Blutman replied to the topic 4th shot? in the forum Coronavirus (COVID-19) and Myasthenia Gravis 1 year, 2 months ago
Hi: I had 3 shots of Pfizer and one Moderna (totalling 4). I got my fourth as my health plan recommended it. I participated in a study through Stanford and two weeks before my fourth, I showed zero antibodies. The worst reaction I had was tiredness, but then I am always tired.
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Lisa Blutman replied to the topic Evusheld Antibody Treatment in the forum Coronavirus (COVID-19) and Myasthenia Gravis 1 year, 2 months ago
I have requested it as after 4 COVID vaccines I still have zero antibodies. I am meeting with my family practitioner on the fifth of April to discuss this. My neurologist sees nothing wrong with it.
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Lisa Blutman replied to the topic The Vaccine: Experience & Side Effects in the forum Coronavirus (COVID-19) and Myasthenia Gravis 1 year, 9 months ago
I have had 3 Pfizer shots. My arm, neck and back were sore with tiredness for my second. 6 months later I had my third with arm soreness and tiredness only for my third.
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Lisa Blutman replied to the topic Acupuncture and Myasthenia Gravis-Have You Tried It? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 9 months ago
I am doing accupuncture for joint pain due to osteoarthritis in my knees. I had had a joint replacement prior to my diagnosis of mg and it looks like the other knee is ready. My pain is managed by accupuncture.
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Lisa Blutman became a registered member 1 year, 10 months ago
Hello, Lisa! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with our forum rules in the…[Read more]