Myasthenia Gravis News Forums Forums Healthcare and Treatments Rozanolixizumab/Rystiggo Treatment

  • frank

    Member
    February 7, 2024 at 9:10 pm

    I was in an 18 week study in which we were testing manual and automatic delivery methods for delivery of the rosanolixizumab. I found the treatment very helpful. I had much more energy physically and mentally and generally felt better.

    However, it totally tanked my immune numbers. At one point my IGg level was in the 90s; normal is 565 to 1700. We had to skip an infusion and when my IGg came up we started again. We did that a couple times.

    I thought the drug provided a great treatment, except for the immune ramifications. So if you try it, make sure that you have regular check ups on your immune numbers. We checked mine every week.

    Good luck! Love and Light,

    Frank

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