One year on plus dry throat and coughing and various sypmtoms.
On my third session of vyvgart hydrulo (had two previous IV Vyvgart infusions before that)with the nurse now coming to the home. Seems to have helped, albeit my tiredness back somewhat. However, over the last several months and getting worse, have now noticed a very dry hacking cough plus big build up of phlegm during the day, almost like I have been smoking two packs of ciggies or vaping which I gave up sometime ago now.
Anyone have this condition or dry throat plus coughing? Related to MG or something else? Weight increasing as well even though Im now down to 10mg of Preds. BP high, being somewhat controlled with Losartan and Edema of the Ankles helped now with Furosemide and have to remember not to take that before long car journeys as need to pee all the time.
Been over one year now since first diagnosed. This time last year was in 2 different hospitals for 4 weeks. Life changing for me, but double vision although nearly gone now does appear back from time to time(much less so than before) and the eyes change daily but not nearly as badly as before. Just don’t have the energy any more or enthusiasm I had before to get things done. Possibly just getting lazy. Have sleep apnea somewhat and they want to do all these tests but at my age, I just know that they are going to find something else and not ready yet for a pap machine. I do need to cut down on the drinking and eating. Im a foodie and have had difficulty in this department but the swallowing and chewing is good. Very rarely, I have a few slight speech issues but it’s so minor, thx goodness. But as mentioned the dry throat and coughing plus build up of stuff in the throat, is a bit of a concern.
I think I count myself lucky when I read what others have been and are going through, long may it continue..best to all………………….
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