[Amy Cessina]

My understanding from my neurologist it’s intravenous magnesium to avoid most of the orally administered does not get absorbed . She said the same about antibiotics when it’s in the vein it a bolus all at once your entire body exposed but when you put it in your stomach not that much gets absorbed. So thats why no one taking it seems affected.

[paul spychalski]

I thought Magnisium is bad for MG?

[Living]

I actually had magnesium infusions before I was diagnosed with Myasthenia. Apparently double vision can be caused by low magnesium. Fortunately I did not have a negative reaction to the Magnesium and I have wondered if that is because I am MuSK positive and not Acetycholine antibody positive. None the less my neurologist now would not give me a magnesium infusion because of the cautions. She says that what I get through diet is acceptable but not to supplement or have infusions. Because of that I do not take a multi-vitamin, I take a B-complex vitamin and other vitamins like Vitamin C or E as recommended by my doctor.

My rule of thumb as far as contraindicated drugs is that I ask my doctor if he is diagnosing the particular drug to save my life (This has occurred in an emergency room, He said no and that there were other options but that drug was the best one. I said it probably was not the best option for me and his alternate worked just fine.) and I tell all my doctors that if they are trying to save my life I would be willing to try almost any drug on the list (two of them have Black Box warnings) but if it is not a matter of life or death I will not take them and I would like the doctor to select an alternative. My doctors have been great and even worked with a pharmacist to find alternatives.

I always have a printed list of the drugs in my purse and more than one ER doctor has thanked me for doing that. I also make sure to give any doctor I see a copy of the list. Two years ago the only other Myasthenia patient that I actually know spent 7 weeks in the hospital, 4 of them on a ventilator, in a Myasthenia crisis. Be cautious; I may be over cautious but…

[Jodi]

You’ve put a lot of thought and care into managing your MG safely. Your approach to medications and working closely with your doctors is really wise, especially with how unpredictable MG can be. Having that printed list on hand is such a smart move, I’m sure it’s been helpful. Your story is a good reminder to advocate for ourselves and stay informed. -Jodi, Patient Advocate

[Tina]

<div>All of my neuros said that it’s magnesium by IV to avoid. They said my multivitamin that has Magnesium Oxide 50mg is ok. I haven’t tried any other separate magnesium supplements as I’m having some MG symptoms currently and didn’t want to risk it. </div><div>I’m on an organic plant based diet with greens, and lots of other supplements including B vitamins and herbs. It was all fine until I started getting insomnia and having breathing problems so I’m getting a sniff xray for the diaphragm soon as my breathing test numbers were low. </div><div>I’ve just got a diagnosis of Macrocytosis with anemia and we’re trying to figure out why my liver enzymes are still going up. I think I need to eat more red meat but I have such a hard time chewing and digesting it. Last month my blood took a nosedive again so I’m back on iron and high 50k Vit D again. </div><div>So I’m hesitant to try Magnesium as I’m on gabapentin and another seizure drug as well as a statin for my carotid blockages. Both of these drugs are on the MG cautionary drug list and I’m afraid to add another. </div><div>The B vitamin and herbs supplement my neuros said was ok to take practically cured my restless legs and neuropathy. So I don’t feel like I need magnesium for that anymore</div>