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    • #16126
      Jodi Enders
      Keymaster

      Something that still sets back my acceptance of having MG is when I attempt to perform a hobby that I did pre-symptoms without any modifications and not achieve the expectations I had set for myself. I have discovered that the key to not set myself up for disappointment is to proactively adjust my hobbies to meet the needs of my new body.

       

      However you choose to view your symptoms is your preference, whether positive: a new opportunity for growth, a sign from the universe of your life purpose, or neutral/negative: a bump in life, a limitation, leaving you feeling completely unmotivated and hopeless. 

       

      I still honestly view having MG as limiting very frequently. However, my perspective took a shift when my grandfather, an artist like myself, advised me to watch the following TED Talk: https://www.ted.com/talks/phil_hansen_embrace_the_shake?language=en. Phil Hansen inspires the audience to embrace life’s roadblocks as positives by sharing his experience of being an artist developing a physical hand impediment. I recommend it as a watch for anyone feeling a heaviness due to the changes they have had to adjust for MG, especially creatives!

       

      I will love to hear your thoughts on the talk if you find a moment to view it and reply. To everyone: what hobbies have you let go, modified, and discovered since MG began impacting you?

       

    • #16159
      Michelle Gonzaba
      Keymaster

      When I was first diagnosed, I immediately regretted everything I didn’t do when I was fully able to. I’m sort of lazy, so pre-MG, I took for granted how easy it was to do most things. Now that I’m in remission, I always try to keep moving around. I enjoy riding my bike, walking, running (more like a slow jog), and Zumba classes.

      Like you said, we can view our symptoms in either a positive or negative light. It’s taken me a really long time, but I’ve finally decided to look at MG in a positive way. It has made me really grateful for what I have and what I can do and to try as many new hobbies as possible.

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