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Have you received triamcinolone injections around the eyeball to treat ocular MG symptoms?
Have you received triamcinolone injections around the eyeball to treat/help ocular MG symptoms?
Did you see improvement after?
“Periocular (around-the-eyeball) injections of triamcinolone, a corticosteroid, may ease early symptoms of ocular myasthenia gravis (MG) and reduce the need for patients to take oral medications that have more potential side effects, a study has found” (https://myastheniagravisnews.com/news/triamcinolone-periocular-injections-ease-ocular-mg-study/).
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5 Replies
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No. What exactly is that? I’ve been looking for something to help with my ocular myasthenia.
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I would also like to know if anyone has had ptosis surgery and if it was successful
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It’s a steroid injection. I have ocular mg but have not done that treatment but plan on asking Neuro about it in two weeks. My MG comes and goes. I have a strange case it’s mild but annoying. Just on a business trip all week. None of them know anything about me having mg. I actually work for a foundation that funds rare disease research too . lol
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I too have MG and Ocular MG, Pyridostigmine helps but I have side effects like Bloating, gas, Diarrhea, but I can walk, w/a cane but don’t fall often. I too will ask about the eye injection. Thanks……
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I have had Ptosis surgery and it was very helpful. That was 6 years ago and am waiting to have it done again. I’m on 15mg of Prednisone per day, Immunosuppressants and IVIG Treatments every 3 weeks. In my home I use a rollator but outside I use an electric wheelchair. I’ve already fallen and broken both wrists and an elbow so not taking any more chances. I have not had ocular steroid injections.
Hope things work out for you.
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