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Does anyone have MG with anti-LRP4 antibody and what treatment works
I have recently been diagnosed with MG with this rare LRP4 antibody. I can’t tolerate Mestinon, and have been on Prednisone for over 4 months. It has helped somewhat with swallowing and breathing difficulties but it is hard for me to get much sleep. My vision is still blurry and sometimes double. Plus I have osteoporosis and Glaucoma and I know this medicine is not good for the long term so I am searching for effective treatments. My doctor said that the next step is IVIG, but I have read that it is not as effective with LRP4 antibody. Unfortunately, there is little research on my anti-LRP4 antibody and some of the typical MG treatments are not as effective. I would like to know if anyone has this rare antibody and if they have found an effective treatment. Also, I would like to know if there is some major University health center that has considerable experience with this antibody where I might get a second opinion. Thanks for any assistance.
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