Does your weight constantly fluctuate with your various MG treatments? In 4 months, I went from the heaviest to the most underweight I have ever been. How do you combat this constant unfamiliarity with your body and unpredictable and often uncontrollable weight change?
Yeah for sure! I’ve dropped 30 pounds in the last year and blamed it on lack of appetite caused by azathioprine. I find I get “full” after eating less food at mealtimes. Some things just don’t have the expected taste either.
Michael Van Alstyne
I have never been a big person. Being on prednisone, azathioprine & mestinon, I was 115,& now am 108. I have lost taste for alot of foods. I always was a big breakfast person, now I can barely eat it. Lost the taste for coffee, bacon & eggs. I eat very small portions. I make meals everyday, it smells delish, but when it comes time to eat, I lose my appetite. My husband yells at me to eat, but I can’t force myself, & then throw up. I use to be a big snacker, & barely eat snacks anymore.
This thread has made me realize that I’m not the only one that has no appetite for food. It’s not due to medications because currently I not on any. But I find I cook and bake but when it’s time to eat I have small portions. I don’t have appetite for snacks either. Since I’ve been diagnosed I’ve dropped about 30 pounds and maintain it there but I didn’t know others had this issue too. Food doesn’t taste that good either same as others.
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