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Are you able to exercise with MG?
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Yes…..walking 2 to 3 kilometres a day and for 5 months in the warmer weather in Australia I swim for 20 minutes a day and always feel really well after this. I am 80 years, have had MG for 60+ years and became a naturopath to help myself and others. I take the adaptogen herb Astragalus (5mgs) daily and this seems to soften the autoimmune reaction. I feel lucky and happy. It was not like this in my youth and I do sympathise with those of you who struggle.
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Hi. While researching the supplement Astragalus it would appear it’s not recommended for those with an autoimmune disease. Glad it is helping you though.
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Hi Leonora -Diana. If you read “Prescription for Herbal Healing” by American Author Phyllis A. Balch you will see that she recommends Astragalus as a beneficial herb for MG. There are other herbs not recommended, like Echinacea, but I have found Astragalus wonderful. It is not an immune stimulant in the same way some other herbs may be as it doesn’t stimulate reactions that create antibodies which are problematic.
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Are you able to exercise with MG? Has this always……
Yes, I have Generalized MG Seronegative. Medications partly reduce physical symptoms of my gMG sneg. Prednisone 5 mg, Cellcept 2000 mg/day, Mestinon 240 mg/day, for MG all to suppress my immune systems.
Each type of MG has different affects. Therefore as each of us as a different MG profile and different symptoms each day. MG is named the “Snowflake” disease as discussed. Therefore you have to figure out how to match and adjust any exercise routine.
Each MG combination has a different level of physical effort where MG will rebound, that’s get worse. When I say this I think about reports about chewing food. It as been reported chewing caused eating to become difficult during a meal.
You may have to keep a journal of what happens during exercise. It’s awkward to sense at first. As you become aware of how your body is reacting you’ll have a database of “hints” you can use to suggestions to start to adjust your exercises.
I’ve seen a number of Youtube videos about MG exercising. Expect to have to view a number of them to see what could be possible. Consult with your Doctors and Nurses about exercise. If they don’t know ask them who you could speak with explicitly about MG exercise. You can call people from the Youtube who are well qualified.
–JSW
myastheniagravisnews.com
Are you able to exercise with MG? | Myasthenia Gravis News Forums
Are you able to exercise with MG? | Myasthenia Gravis News Forums
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Are you able to exercise with MG? Has this always……
Yes, I have Generalized MG Seronegative. Medications partly reduce physical symptoms of my gMG sneg. Prednisone 5 mg, Cellcept 2000 mg/day, Mestinon 240 mg/day, for MG all to suppress my immune systems.
Each type of MG has different affects. Therefore as each of us as a different MG profile and different symptoms each day. MG is named the “Snowflake” disease as discussed. Therefore you have to figure out how to match and adjust any exercise routine.
Each MG combination has a different level of physical effort where MG will rebound, that’s get worse. When I say this I think about reports about chewing food. It as been reported chewing caused eating to become difficult during a meal.
You may have to keep a journal of what happens during exercise. It’s awkward to sense at first. As you become aware of how your body is reacting you’ll have a database of “hints” you can use to suggestions to start to adjust your exercises.
I’ve seen a number of Youtube videos about MG exercising. Expect to have to view a number of them to see what could be possible. Consult with your Doctors and Nurses about exercise. If they don’t know ask them who you could speak with explicitly about MG exercise. You can call people from the Youtube who are well qualified.
–JSW
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I can exercise with MG but I have to be self-aware. If I let my mind go to a place where I am stressed or anxious…I stop exercising. If I feel that I’m weakening…I stop. If I notice a stumble on the treadmill… I stop. It always feels like I am too cautious but I know that pushing too hard will ruin my day, most likely ruin tomorrow too…and who knows how much longer. I am able to exercise in several small (10-15 minute) periods through the day. Some times only 10 minutes in the day — sometimes a cumulative total of an hour or more; always staying aware that I do have MG and I can maintain my stability but too much exercise will negate my efforts. I also belong to an MG Exercise Group on Facebook. You can get some good information from the administrators and participants in the group.
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I started slowly at home, old school Wii Fit, I could jump on and take breaks as needed. I totally revamped my diet at well.
Last week I started at gym with a friend. I do some light weights, taking breaks as needed. I just keep plugging and stay self aware of fatigue.
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No energy, no balance, double vision, oh well. How long does it take to die from gMG?
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Until recently I was walking everyday and managed to get up to about 2 miles at 3 MPH. But one day something hit me. I don’t know what it was, maybe Covid. In any event, suddenly I couldn’t walk 100 yards slowly without feeling like I was collapsing. I have recently gone back on the treadmill and can put in 2 miles at 3MPH. AS Churchill said on air, in England’s darkest hour, “Never, ever, ever, ever give up!”
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The old saying “move it or lose it “comes to mind. Sitting in a chair move your legs and feet. Try some stetches. do some balance exercises. We all need to try to move with this MG.
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