‘Healthy’ Doesn’t Necessarily Mean ‘Normal’

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by Megan Hunter |

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For the past two years, pipes have been sticking out of my chest. I have had a port beneath the skin just under my collarbone. Many treatments have caused me to catch numerous infections floating around, so I have had to wear a medical mask when in public. I have experienced whispers, pointing, and flat-out stares. People have made assumptions about me, but they also have asked caring questions. I have been prayed for by strangers and dismissed by friends. And I have had to draw on strength I didn’t even know I had.

Before my diagnosis, I took “normality” for granted. I didn’t expect these trials or to struggle every day just to survive. I thought I would be traveling along a certain path: finish school, go to university, get a good job, find my Prince Charming, get married, and have four children. I thought my problems were huge, but I have come to see that they were insignificant in the greater scheme of things. I have been allowed a different point of view of my life and now I see what is truly important.

Chronic illness has ripped me to pieces, but it has also gently placed the pieces back together. I may not be exactly as I was before, but I am a better me. I have learned patience, kindness, empathy, and compassion. I have learned that I need to set boundaries. I have learned to tell those who are important in my life that I love them. I have felt like an outcast, and then found a new tribe of people who love me for me — warts and all!

I took a year longer to finish school and took some time to get into a job that I could actually manage and enjoy. I met my Prince Charming (after finding some frogs) and got married.

Sadly, the part about having children has had to fall away. Medication destroyed my ability to have kids. I wish that I had been warned of that from the beginning. I feel like I have lost a piece of myself that I never really had. I have a deeply rooted pain that I don’t think will ever go away.

However, there is so much to be grateful for. Every day I look for something “special” that makes me smile. I didn’t set a New Year’s resolution for 2019. Instead, I chose a word to focus on in all aspects of life: HEALTHY. I will concentrate on that word in my relationships, lifestyle, eating habits, interactions, thoughts, and life in general. By focusing on this positive word, I have already had a turnaround in life. I appreciate the small things. I am no longer afraid of death. If it is my time, then I will accept that. But for now, life is good. It is filled with love, rainbows, and happiness.


Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.


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Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.