One of the hardest things about living with a chronic illness like myasthenia gravis (MG) is the dialogue that doesn’t happen with people we know. The eye rolls we perceive when we try to update loved ones about our health status — whether they’re real or not. Or the phone…
The Whispered Roar – a Column by Shawna Barnes
Many of my friends, colleagues, and family members set goals for the year in January. Goals can be personal or professional, interpersonal or financial, realistic or not. What makes a goal realistic, particularly for someone with myasthenia gravis (MG)? It’s a tough question to answer, but I’ll do my best.
Welcome to “The Whispered Roar,” a column where I will describe what it’s like living with a neuromuscular autoimmune disease called myasthenia gravis (MG). I was officially diagnosed with generalized MG in 2018, although I had been battling symptoms since 2011. My journey to diagnosis is not an uncommon…
Recent Posts
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- My husband and I rarely disagreed — until his myasthenia gravis diagnosis
- After 24 years, I never let MG keep me from living fully, doing what I love
- Depression, fatigue harm MG life quality despite stable physical signs
- How to explain MG in terms that are simple and easy to understand