News

August 13, 2019August 13, 2019

Similar Clinical Characteristics With MG Onset Before or After Thymectomy, Study Shows

News

Patients who develop myasthenia gravis (MG) either before or after surgical removal of the thymus (thymectomy) due to a thymoma — a tumor originating from the thymus — share ... Read more

August 8, 2019August 8, 2019

Soliris Has Durable Efficacy in Japanese, Caucasian gMG Patients Alike, Extension Data Show

News

Treatment with Soliris (eculizumab) provides comparable and sustained improvements in daily living and muscle strength in Japanese and Caucasian patients with treatment-resistant generalized myasthenia gravis (gMG), according to one-year data of ... Read more

August 6, 2019August 6, 2019

Gut Microbes, Metabolic Changes May Provide Accurate MG Biomarker

News

Analyzing microbial and metabolic changes in fecal samples may provide a highly reliable way to diagnose myasthenia gravis (MG) and monitor its severity, according to a new study in ... Read more

August 1, 2019

Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News

Screening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, especially for rare disorders, has a ways to go in the United States. No state ... Read more

August 1, 2019

Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News

Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of teen births per 100,000 teenage ... Read more

August 1, 2019August 1, 2019

Nerve Response Tests May Drive Therapies Given to People with Milder Disease, Study Suggests

News

Patients with mild myasthenia gravis (MG) but with poorer nerve cell response in initial diagnostic tests are more likely to progress to more aggressive therapy regimens than those with ... Read more

July 30, 2019July 30, 2019

Prompt MG Treatment May Help Restore Reproductive Health After Premature Ovarian Failure, Case Report Suggests

News

Myasthenia gravis (MG) can co-occur with premature ovarian failure (POF). Prompt and proper MG treatment, however, can help restore reproductive organ health, a recent report of two cases suggests. ... Read more

July 25, 2019July 25, 2019

High Carbon Dioxide Levels in Blood at Myasthenic Crisis Onset Linked to Increased Mortality Risk, Study Suggests

News

High levels of PCO2 — a measure of the amount of carbon dioxide gas dissolved in blood — may be a useful biomarker for higher mortality risk in people ... Read more

July 22, 2019July 22, 2019

Certain Cholesterol-Lowering Statins May Increase Risk of MG, WHO-based Study Suggests

News

The use of blood cholesterol-lowering medications called statins is linked to a small risk of myasthenia gravis (MG), according to a large World Health Organization database study. The study, ... Read more

July 18, 2019July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

News

A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

Pin It on Pinterest