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December 10, 2019December 11, 2019

Late-onset MG Found Primarily in Men, Responds Well to Prednisone With Azathioprine, Study Finds

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Most patients with late-onset myasthenia gravis (LOMG) — those whose disease appears at age 50 or later and is not related to tumors in the thymus gland — are ... Read more

December 5, 2019December 5, 2019

HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

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Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s ... Read more

December 5, 2019December 5, 2019

MG Complicated by Thymus Tumor and Immunodeficiency Should be Treated with Caution, Case Report Warns

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A rare case of myasthenia gravis (MG) complicated by a tumor in the thymus and an immunodeficiency known as Good syndrome has been documented by researchers, who warn against ... Read more

December 3, 2019December 3, 2019

Cyclophosphamide May Be Low-cost Option for Refractory Patients, Study Says

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Cyclophosphamide, a medicine with immunosuppressant abilities, may be a potential short-term alternative treatment for refractory — or difficult to treat — myasthenia gravis (MG), especially in lower-income countries, a ... Read more

November 21, 2019November 21, 2019

Difficult-to-treat MG Affects Working Hours and Employment Status, Study Finds

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People with refractory myasthenia gravis — those whose symptoms persist after treatment — are more likely to miss working hours and to be unemployed than those whose disease responds ... Read more

November 19, 2019November 19, 2019

MS Medication Shows Promise in Treating Refractory Myasthenia Gravis, Small Study Says

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Cladribine, a medication for relapsing multiple sclerosis, eased symptoms and reduced the need for high-dosage corticosteroids in people with treatment-resistant myasthenia gravis, a small study shows. The study, titled ... Read more

November 14, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

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Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 12, 2019November 12, 2019

Amneal Partners with Kashiv BioSciences to Develop Extended-Release Pyridostigmine for MG Treatment

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Amneal has signed a licensing agreement with Kashiv BioSciences to develop and potentially commercialize K127, an extended-release tablet of pyridostigmine, for the treatment of myasthenia gravis (MG) in the United ... Read more

November 7, 2019November 7, 2019

First Clinical Trial of CAR-T Therapy for Myasthenia Gravis, Descartes-08, Enrolling at Miami Site

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A first clinical trial of Descartes-08, a CAR T-cell therapy for people with generalized myasthenia gravis (GMG) by Cartesian Therapeutics, is enrolling patients. CAR T-cell therapies have shown promise in multiple ... Read more

November 5, 2019November 5, 2019

Certain Risk Factors May Make Patients with Thymomas More Susceptible to MG, Study Reports

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For people with thymomas, certain risk factors, such as clusters of developing B-cells, called germinal centers, in their thymuses, may make them more likely to develop myasthenia gravis (MG), ... Read more

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