News

April 1, 2021March 31, 2021

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

News, syndicated

As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking. But exactly how expensive — in terms of ... Read more

April 1, 2021April 1, 2021

Too Much Pyridostigmine May Increase Overactive Bladder Issues

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High pyridostigmine doses cause overactive bladder issues in people with myasthenia gravis (MG), according to a recent study. Because of this, doctors should take patients’ bladder-related discomfort into account when ... Read more

March 30, 2021March 30, 2021

Immunosuppressants May Be Beneficial to Treat MG Patients With COVID-19

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In two of three myasthenia gravis (MG) patients who contracted COVID-19, the use of immunosuppressants did not cause an exacerbation or myasthenic crisis, a case study reports, suggesting the treatments ... Read more

March 25, 2021March 25, 2021

Soliris Effective and Safe in Real-world Use, Japanese Study Reports

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Soliris (eculizumab) was found in a real-world setting to safely and effectively treat adults with generalized myasthenia gravis (gMG) who had stopped responding to other treatments, according to a post-marketing ... Read more

March 23, 2021March 23, 2021

MG May Mimic Stroke Symptoms, Case Report Suggests

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Myasthenia gravis (MG) can mimic the symptoms of a stroke and should not be ruled out even in younger patients, a recent medical case report suggests. The report, “Myasthenia gravis ... Read more

March 18, 2021March 18, 2021

#MDA2021 – Infection Risk Found Unaffected by Long-term Soliris Use

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When used over long periods of time, Soliris (eculizumab) does not increase the risk of infections in people with generalized myasthenia gravis (gMG), according to a new analysis of clinical ... Read more

March 16, 2021March 16, 2021

Disease Crisis Linked to Distinct Pro-inflammatory Immune Changes

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Myasthenia gravis (MG) crisis, the disease’s most severe state, is associated with pronounced pro-inflammatory cellular and molecular changes, a recent study shows. Notably, several pro-inflammatory immune cells and molecules were ... Read more

March 11, 2021March 11, 2021

Rapid Tapering of Prednisone Safe and Effective for Generalized MG, Trial Finds

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Rapid tapering of high-dose prednisone appears to be a feasible, safe, and effective option for people with moderate-to-severe generalized myasthenia gravis on a combination of corticosteroids and immunosuppressants, according to data ... Read more

March 9, 2021March 7, 2021

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

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Many diseases have their own awareness color — breast cancer is pink, muscular dystrophy is green, and AIDS is red, for example — but what’s the significance of pink, green, ... Read more

March 9, 2021March 9, 2021

Phase 3 Trial of Zilucoplan Enrolling Adults with Generalized MG

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Ra Pharmaceuticals is enrolling adults with generalized myasthenia gravis (gMG) in RAISE, its global and pivotal Phase 3 trial evaluating the safety and efficacy of zilucoplan, the Muscular Dystrophy Association ... Read more