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February 11, 2020February 11, 2020

FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

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The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. Yet even with its enormous ... Read more

February 11, 2020February 11, 2020

Fewer Plasma Exchange Treatments, Poorer Kidney Health Increase Risk for MG Relapses, Study Suggests

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Receiving fewer plasma exchange, or plasmapheresis treatments and having poorer kidney function with lower filtration rates are risk factors for myasthenia relapses, a study suggests. Over a follow-up of 50 ... Read more

February 6, 2020February 11, 2020

With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus

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The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan in Amsterdam’s suburban Zuidas business district, finally opened for business last month — just over ... Read more

February 6, 2020February 6, 2020

Antibody Status Predicts Remission in Juvenile Myasthenia Gravis, Study Suggests

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The type of antibodies found in children with myasthenia gravis (MG) was the primary predictor of disease remission, or not requiring medication for one full year, a study showed. ... Read more

February 4, 2020February 4, 2020

MG Treatments Should Consider Patients’ Elevated Risk Of Serious Infections, Study Suggests

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People with myasthenia gravis (MG) are at higher risk of developing serious infections than those without the condition, a recent study has found. Although more research into the causes ... Read more

January 30, 2020January 30, 2020

Rare Lymphoma Found in Man with Myasthenia Gravis, Case Study Reports

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A 35 year-old man with myasthenia gravis (MG) who developed a rare lymphoma — called mucosa-associated lymphoid tissue (MALT) — in the thymus gland containing “extensive” amyloid deposits is ... Read more

January 28, 2020January 28, 2020

Anticholinergic Drugs Could Be Safely Used for ‘Death Rattle’ Breathing in MG, Case Report Suggests

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The anticholinergic agent glycopyrrolate — known to decrease stomach acid and saliva production — could be safely used to control “death rattle” breathing in people with myasthenia gravis (MG), ... Read more

January 23, 2020January 24, 2020

Probiotics May Have Therapeutic Effect on Myasthenia Gravis Symptoms, Rat Study Suggests

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Administration of the probiotic bifidobacteria may ease myasthenia gravis (MG) symptoms by regulating the behavior of immune cells and altering the makeup of gut bacteria, a study in rats ... Read more

January 21, 2020January 21, 2020

Scientists Create 3-D Model to Study Neuromuscular Disorders, Including Myasthenia Gravis

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Scientists have created — in a lab dish — a three-dimensional model system made of human neurons and muscle cells that can be used to study neuromuscular disorders, including myasthenia ... Read more

January 16, 2020January 16, 2020

Variations in Immune System Gene Linked to Late-onset MG Risk, Meta-analysis Suggests

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Variations in the gene DRB1 are associated with different risks of developing late-onset myasthenia gravis (LOMG), a recent meta-analysis suggests. This finding may lead to the identification of promising ... Read more

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