The Whispered Roar – a Column by Shawna Barnes

As I get back to swimming, slow and steady wins the race

Two hundred measly yards. If you had asked 14-year-old me to swim 200 yards, I would’ve laughed, flipped down my goggles, and knocked it out before you finished the question. I was a distance swimmer. The 1,000-yard and 1,650-yard races were my jam. There were plenty of practices where my…

A day in the water is just what the doctor ordered

Healing doesn’t always look like rest and stillness. Sometimes it looks like kicking your legs with wild abandon in a murky lake while your husband looks on amused, wondering how his 41-year-old wife suddenly turned into a giddy 10-year-old. I’ve always loved the water, and it’s where I’ve felt the…

An MG exacerbation lands me in the hospital again

It all started during a regular intravenous immunoglobulin (IVIG) infusion, part of my routine dance with myasthenia gravis (MG). I was mid-infusion when my eyelids started doing the gravity tango and my ability to speak and swallow took a nosedive. Drooping, choking, and that unmistakable MG weakness crept in…

Learning to recognize the signs and symptoms of stress

I used to think stress always looked like a dramatic meltdown. You know, ugly crying, yelling into a pillow, eating a bag of cheese curls while binge-watching trashy TV. (Been there, no regrets.) But stress is sneakier than that. She doesn’t always knock loudly. Sometimes she’ll tiptoe in wearing…

Riding the wave of euphoria that follows my IVIG infusions

Note: This column describes the author’s own experiences with intravenous immunoglobulin (IVIG) infusions. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. The week, after my cousin’s wedding, I had an intravenous immunoglobulin (IVIG) infusion scheduled — and thank…