My twin brother, Aaron, and I are getting older and looking for ways to make our daily lives more convenient. I didn’t see him turning to an electric scrub brush to make washing dishes easier, however. I called him the other day and watched him using one, a small appliance…
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I might be the most curious worker on the planet. I love learning new things, discovering novel industries, and exploring what makes people tick through their work. That’s one of the things I enjoy most about working in social media. Depending on the client, I get to dive into different…
“What you aim at determines what you see.” — Psychologist and author Jordan B. Peterson For centuries, this deceptively simple truth has echoed through philosophy, faith, and medicine. For those of us living with myasthenia gravis (MG), it resonates with force. MG can feel like a thief. It may…
Let’s be honest right out of the gate: Grief stinks. It’s messy, exhausting, and sneaky. And if you live with a chronic illness like myasthenia gravis (MG), grief isn’t just about losing people you love; it’s about losing versions of yourself you never thought you’d have to say goodbye…
The very first “code” my mom and I cracked together came long before I even had a diagnosis. Back when I was just a kid with mysterious symptoms no one could explain, we noticed that one thing always seemed to help: sleep. No matter how much pain, weakness,…
Life with myasthenia gravis (MG) often feels unpredictable. One day, my legs are steady enough to walk Pablo, my French bulldog, around the block. The next day, weakness makes standing at the kitchen counter a challenge. Some of the muscles MG attacks control breathing, swallowing, lifting, and keeping one’s head…
Lately, I’ve been repeating the same sentence to anyone who asks me why I don’t do something: “It’s not my priority.” But the more I’ve said it, the more it echoes inside of me. Why am I living in survival mode? Why am I only taking care of “priorities”? Then…
Living with myasthenia gravis (MG) has taught me that words are as important as medicine. The language we use to describe illness can shape how others perceive us and how we view ourselves. Doctors have a vocabulary developed through years of education and experience, while our loved ones…
As I enter my 50s, I find myself living alone as an expatriate in Asia, and I constantly worry about accidentally injuring myself. I’m particularly concerned about slipping and falling. I’ve realized that as we age, it’s essential to prioritize safety. Recently, I had a conversation with my twin brother,…
I went through a long phase in which I proudly followed a minimalist lifestyle. I was totally against gadgets, especially the small ones that seem unnecessary. Garlic crushers in the kitchen? Useless. Those mini massage tools advertised all over social media? Just clutter, or so I thought.
Recent Posts
- MMF treatment may act faster than azathioprine for gMG: Study
- The pain of having myasthenia gravis is real, but there is joy in it, too
- Honoring those who care for others by ensuring no one is forgotten
- Thymectomy eases symptoms for children, teens with juvenile MG
- Real-world study finds Vyvgart often effective in gMG, but responses vary