When you first get sick, it’s difficult to keep up with the number of cards, bouquets of flowers, and hospital visits you receive. Every day someone comes to visit you in the hospital, and you run out of space to display all of your gifts. However, as time goes on,…

I was never gifted with numbers, but I always felt confident when it came to languages. When my emotions are too overwhelming to comprehend, I look for answers in written work, or I simply start writing down how I feel. It helps me deal with big emotions and determine why I…

Living in a developing country influences my view of the world. I come into contact with the poorest of the poor, yet I can attend world-class private hospitals because I am fortunate to be able to afford medical insurance. We live in such a busy and fast-changing era that we…

Once upon a time, I was healthy and vibrant, reveling in the promises of the future. There is something so delightful about the naivety of youth. It is unspoiled and untainted by the stains of this world. It thrives in the dreams of tomorrow and the wondrous audacity…

One of my closest friends, a fellow MG warrior and mom to an MG teen with juvenile arthritis, told me tearfully one day about how her daughter never got to “ring the bell.” You see, her daughter’s primary juvenile arthritis (JA) treatment was chemotherapy infusions administered in an infusion suite…

Life is filled with a special package of ups and downs individually tailored for each of us. We are then presented with the opportunity to overcome these obstacles or let them take over every aspect of our lives and eventually limit us. I have never been a fan of the…

At school, I wanted to belong to the “cool crowd.” I used to watch them from the outside and was so jealous of the way they seemed to glide around school, owning every little aspect of it. We all wanted to be in their little clique because they were the…

It takes serious work to be a patient, regardless of the disease you have. The lay person’s portrayal of chronic illness and the subsequent clinical perceptions of patients leave a lot to be desired in their inadequate awareness, and, at times, acceptance of our reality. These impressions barely scratch the…

The first thing I was forced to learn very quickly after falling ill is that doctors are only human. It does not matter if they are specialists, general practitioners, or retired; human nature is bound to catch up with them at some stage. As we all know, human nature is…

During my most critical year with myasthenia gravis, I spent an inordinate amount of time in the emergency room and on various hospital floors. A good deal of the ER staff soon got to know me by name and, while clueless as to how to help my rare but potentially deadly…