“Silence is a true friend who never betrays,” Confucius once said. There is so much modern science doesn’t know about myasthenia gravis (MG). It must be taxing and frustrating for people with MG to explain the disease and its symptoms to family, friends, and others who may have…
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We all like to observe others in subways, buses, or streets, and when I do it, I find myself asking, “What are they thinking about? How is their life going? Do they have the same problems as me, or are theirs worse?” I’m confident that many of you think of…
American writer William Arthur Ward is believed to have said, “Feeling gratitude and not expressing it is like wrapping a gift and not giving it.” I’m not grateful enough for my relatively good health. I’m overweight, don’t exercise enough, and use the stress of my freelancer life…
Last year, I woke up to terrible news: One of my colleagues had passed away. Although I didn’t know her personally, I knew she’d lived with a chronic illness and was an advocate for those with her condition. Her death was sudden and unpredictable, and I felt numb and choked.
Six months can feel like forever. Using an elimination diet to detect food sensitivities can seem to last forever. Many such diets are restrictive at the start, which makes them difficult to stick with for long periods of time. But that’s sort of the point. In May, I started…
A quote attributed to Siddhartha Gautama, known as the Buddha, says, “You will not be punished for your anger; you will be punished by your anger.” In other words, no matter how much we feed it, anger never has a full belly. The more we feed it, the more we…
If you’ve read my diagnosis story, you know it took me a decade to find out I have myasthenia gravis (MG). But why? Didn’t I see professionals? I did. Weren’t they familiar with MG? They were. Were my symptoms unclear? Absolutely, or this journey wouldn’t have been so…
Recently I noticed that expressing gratitude results in a change in my body. It’s hard to put into words, but I feel warm and peaceful. Something is different — better. I decided to investigate this phenomenon. I wanted to know if the symptoms of myasthenia gravis (MG) are…
Close your eyes and imagine that you’re in a diving suit, swimming in a warm and comfortable lagoon. You find yourself drawn into the depths of the beautiful teal water by a siren. At first you don’t realize how far you are from the surface; you’re too enamored by the…
Author Jane Austen once wrote, “Those who do not complain are never pitied.” I was a mediocre English major in college. I won’t tell you I adored “Pride and Prejudice,” but I’ve always remembered that gut-wrenching line. To pity someone is to feel sorrow, compassion, and sadness due to their…
Recent Posts
- Late-stage trial testing KYV-101 seeking adults with hard-to-treat gMG
- Finding a balance between symptom tracking and living life
- I don’t want to lean on my brother too hard if he doesn’t want to lean on me
- Vyvgart shows rapid benefits for generalized myasthenia gravis: Study
- I write about living with MG because I feel too much to keep it all inside