Don’t tell anyone, but an MG diagnosis gives us superpowers
Stepping out of the phone booth, I put my glasses on and look around to make sure I’m not spotted.
Articles by Shawna Barnes
My experience seeing double with myasthenia gravis
Are you seeing double? I was. And I still do if I push myself to a certain level of weariness.
Education is a part of living with a rare disease like myasthenia gravis
Q: What is myasthenia gravis (MG)? A: It’s a neuromuscular autoimmune disease. Q: What is a neuromuscular autoimmune disease?…
Navigating the VA healthcare system with presumptive conditions
“A service-connected condition means an illness or injury that was caused by — or got worse because of — your…
Learning to practice the most important kind of love: self-love
Love. It’s a four-letter word that can mean a hundred different things, depending on how and where it’s used. One…
When I stumble, my husband is there to catch me
It was 11:50 p.m. Wednesday night, and I was just getting ready to head up to bed after a long,…
I’m living with disability, but I’m still more than ‘the things I cannot do’
Last week, I was asked to respond to “Tell me about yourself” as it related to my disabilities and the help…
I’m living with MG, and my best life, where everybody knows my name
I live in a little community in northwestern Wisconsin that boasts fewer than 1,000 year-round residents. This fluctuates…
What causes air hunger for me as someone with myasthenia gravis?
Columnist Shawna Barnes discusses air hunger with MG, its causes, how it differs from other shortness of breath, and strategies for managing this symptom.
Getting my definition of adequate sleep is vital to manage my MG
Would you, could you, on the floor? I could not, would not, on the floor. I will not do it…