For the first time in a long time, I was frustrated with care that I had received. I recently had to go to a hospital emergency room, where, unfortunately, I didn’t feel that I was being heard as I tried explaining that something other than myasthenia gravis (MG) was…
If you were given the gift of nine extra hours a week, what would you do? This was the situation my husband and caregiver, Justin, and I found ourselves in last week. In February, we met with the owner of an organization that we were referred to by the…
Stepping out of the phone booth, I put my glasses on and look around to make sure I’m not spotted. I look to the left and then to the right one more time before hobbling into the darkness and blending in with that which is unseen. What does that remind…
Are you seeing double? I was. And I still do if I push myself to a certain level of weariness. When I first experienced double vision, I thought that either my crappy vision was worsening (I’ve worn bifocals since I was 18) or that my new symptom, a droopy…
Q: What is myasthenia gravis (MG)? A: It’s a neuromuscular autoimmune disease. Q: What is a neuromuscular autoimmune disease? A: It’s when your immune system attacks the junction where nerve cells meet muscle cells. Does anyone else feel like they’re giving a lecture when explaining this thing we…
“A service-connected condition means an illness or injury that was caused by — or got worse because of — your active military service.” Did you know that the U.S. Department of Veterans Affairs, also known as the VA, considers myasthenia gravis (MG) a presumptive service-connected condition for veterans?…
Love. It’s a four-letter word that can mean a hundred different things, depending on how and where it’s used. One of the things that sets my husband, Justin, and I apart from some folks is that we don’t wait for Valentine’s Day to celebrate and honor the love we…
It was 11:50 p.m. Wednesday night, and I was just getting ready to head up to bed after a long, frustrating day at the office. Meetings that ran late and frustrating tech issues were among the woes that led me to this point. Yet as I was unplugging for…
Last week, I was asked to respond to “Tell me about yourself” as it related to my disabilities and the help I needed around the house. The request came during an intake meeting to have an outside caregiving company come in to help my husband and me. Even though I…
I live in a little community in northwestern Wisconsin that boasts fewer than 1,000 year-round residents. This fluctuates greatly during the winter and summer tourist seasons. I had concerns about living in such a rural area when my husband and I decided to move from Maine…
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