“It’s just anxiety.” “It’s just stress or PTSD.” “You just need more rest.” For many of us in the…

With a prevalence of 14-40 cases per 100,000 people in the U.S., myasthenia gravis (MG) is considered a rare…

“Let’s talk about sex, baby/ Let’s talk about you and me/ Let’s talk about all the good things/ And the…

Last month, I began experiencing symptoms of COVID-19. My husband had tested positive two days before that, but we…

I wrote last week about how the inaction and silence of others can be deafening. The opposite is also…

One of the hardest things about living with a chronic illness like myasthenia gravis (MG) is the dialogue that doesn’t…

Many of my friends, colleagues, and family members set goals for the year in January. Goals can be personal or…

Welcome to “The Whispered Roar,” a column where I will describe what it’s like living with a neuromuscular autoimmune disease…