You’ve Received a Myasthenia Gravis Diagnosis — Now What?
When you finally receive your diagnosis of myasthenia gravis, it will probably come as a huge relief. You have likely…
Articles by Megan Hunter
Medical PTSD Is a Reality for Many of Us Living with a Rare Disease
I wake up sweating. I feel tears pouring down my cheeks, and my throat is sore from screaming. Where am…
We May Have the Same Diagnosis, but We Are Vastly Different
When people are diagnosed with a specific condition, they might be able to read about it on the internet or…
A Recent Medication Lapse Has Refocused My Attention on Self-care
On a recent day, I popped out to the shops to pick up a few items when I realized I…
I Was Honored to Receive an Award for My Rare Disease Advocacy
I recently attended the South Africa’s Women Givers Awards. I had been invited to the awards ceremony as a nominee…
Reassessing What’s Important After Relapse
I have started this column many times, but I have had trouble putting my emotions into words. I am trying…
Exhaustion Means Being More Than Just a Little Bit Tired
When you are diagnosed with a rare disease, you may think that your life is over. You read all of…
After Seven Years of Marriage, We’re Finding Our Groove
This year, my husband and I will have been married for seven years. They say there is a thing called…
The Importance of Looking After Your Gut Health
On Saturday, I attended an autoimmune disease seminar, where I listened to speakers talk about the importance of good gut…
Supporting a Friend with a Rare Disease
It can be difficult being friends with someone who is chronically ill. They often have to cancel on you, or…