Charlotte Laycock receives a plasma exchange to help control her myasthenia gravis. (Photos courtesy of Charlotte Laycock) This is Charlotte Laycock’s story: Being diagnosed with generalized myasthenia gravis (MG) in my early 30s was something I never expected. At the time, I was living a fast-paced single life…
Stefanie Shea and her husband, Dave Akers, attend a recent concert. Shea is in her power wheelchair, which enables her to leave the house and participate. (Courtesy of Stefanie Shea) This is Stefanie Shea’s story: I’m a musician, artist, advocate, and nerd who has lived with myasthenia gravis…
Wayne Seward was diagnosed with generalized myasthenia gravis in 2024. (Courtesy of Wayne Seward) This is Wayne Seward’s story: I was officially diagnosed with generalized myasthenia gravis (gMG) in February 2024. However, my journey began a few years earlier with four symptoms: chronic fatigue, shortness of breath…
Joe Enders and his daughter, Jodi, smile at a Florida spring two months after her thymectomy surgery. (Courtesy of Joe Enders) This is Joe Enders’ story: When our daughter was diagnosed with myasthenia gravis (MG), everything changed overnight. Jodi was in crisis and could barely speak,…
Barry Stalker works out at the gym, his favorite place to challenge himself mentally and physically. (Courtesy of Barry Stalker) This is Barry Stalker’s story: I was always an active teenager. I played a variety of sports in school, which led me to discover the gym and, eventually, competitive…
Jodi Enders reflects on her favorite place for creative inspiration and relaxation: the Everglades in Florida. (Courtesy of Jodi Enders) This is Jodi Enders’ story: I was diagnosed with myasthenia gravis (MG) just before the final semester of my undergraduate degree in anthropology, with an emphasis on…
Kristina Kelly holds her dog Noah. (Courtesy of Kristina Kelly) This is Kristina Kelly’s story: It took five neurologists, five years, and a lot of being told “but your labs are normal” before I was finally diagnosed with seronegative myasthenia gravis (MG). Like so many others, my journey…
Mike Stabile holds his grandson, Alex Stabile, while in between myasthenia gravis flare-ups. (Courtesy of Mike Stabile) This is Mike Stabile’s story: There are no physical signs that I have myasthenia gravis (MG). My last flare-up ended in July, 11 months ago. Previous flare-ups would last two to…
Retha De Wet enjoyed three happy years in remission from myasthenia gravis, during which time she gave birth to her daughter. But her symptoms have recently reemerged. (Courtesy of Retha De Wet) This is Retha De Wet’s story: I have always wanted to be a mother. I’ve always wanted…
Jasmine Nathan was diagnosed with generalized myasthenia gravis with thymoma in 2018, but now has her gMG fully managed. (Photo courtesy of Jasmine Nathan) This is Jasmine Nathan’s story: It was the summer of 2018 in Chicago. I was trying to balance everything. I had a husband, a stepson,…
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