The recent Muscular Dystrophy Association (MDA) Engage Community Seminar with Stanford Medicine was packed with educational sessions, but some of the most meaningful takeaways for participants were about connection and community. “That’s what makes…
We are pleased to partner with the Muscular Dystrophy Association (MDA) to bring you coverage from the MDA Engage Symposium.
Also covering MDA Engage 2026:
Two interconnected themes — community and hope — dominated the conversations at a recent gathering of people living with neuromuscular diseases. Lily Sander, MDA National Ambassador, speaking at MDA Engage: Dallas. (Photo by Tara…
With a wide range of treatments available for myasthenia gravis (MG), it’s important to individualize treatment to each person’s needs, depending on their symptoms and what their life was like before they…
Lily Sander will never forget what it was like to meet other people with neuromuscular diseases the first time she attended Muscular Dystrophy Association (MDA) Summer Camp. Living with Charcot-Marie-Tooth disease, Sander had…
For many people living with rare neuromuscular diseases, the most meaningful part of a recent Chicago gathering was not just the medical updates — it was finding a community that understood their daily struggles. The…
People living with myasthenia gravis (MG) have more treatment options today than ever before, and emerging approaches like CAR T-cell therapy could soon add another powerful tool, a neurologist told patients and caregivers…
Mindy Henderson has spent much of her life challenging the limits others have placed on her. When she was diagnosed with spinal muscular atrophy (SMA) — a genetic condition that causes muscles to weaken over…
The Muscular Dystrophy Association (MDA) brought its Engage Community Seminar to Hershey, Pennsylvania, on July 18, uniting individuals with neuromuscular diseases, caregivers, and medical experts for a day of education and connection. Hosted in collaboration…