Ari Maayan, of Albuquerque, New Mexico, is a biotech innovator and former Marine. He paints a powerful picture of the emotional strength a great caregiver can offer someone with MG.
Transcript
I have a woman in my life who’s not only does a lot of things for me, like she’s a great cook and everything, but she’s the type of person that I wish we all had and all of us with MG would have had in our life because we need people in our life who not only accept us for who we are as human beings, but accept us for people who have a condition that has the ability to really, really take us down there.
I have someone in my life, and hopefully all of us, MG folks out there, have someone in their life or can find someone in their life who can step up to the plate when you really need them and pull you back from the edge in a kind and loving way with true understanding and is willing to go the extra mile to help you keep from just falling flat on your face.
We really, we really, really need it. And I’m a lucky man that I have someone in my life that can do that for me. And God, I wish we could all have it. I wish from the bottom of my heart that everybody that’s dealing with this MG thing, that we could all have somebody like that. You know, God bless them if they’re there for you.
Without it, I don’t know what I’d do. I really don’t. Because there are times when I can’t deal and I can be pulled — I have somebody that can pull me back from the edge.
