Creigh Lidiak, an MG caregiver advocate, shares how open conversations, daily check-ins, and honest communication with doctors have helped her and her husband navigate life with MG together.
Transcript
We try to be very positive around here. We have a blog. My husband says, “Comparatively speaking, I’m blessed. He’s blessed.”
And so, every morning we have coffee together and we discuss his symptoms. “What is it that you’re feeling? What is it that you see?”
And we talk about the positive. We talk about the negative. And before each appointment we talk about, “What are you going to tell the doctor? What are you going to say to the doctor? And you need to make sure that the doctor knows everything. Don’t try to always be positive. That doctor can’t help you if they don’t know everything.”
And then we talk about, “This is our new normal. This is how things are going to be. And instead of letting it control us, we control it.”
And so we joke about how, “MG you’re here, but you’re not welcome, and you’re going to have to take this seat over at the child’s table. And we’re going to sit at the adult table.”
