Creigh Lidiak, an MG caregiver advocate, shares how simple organization helps her to respond to emergencies and make appointments smoother.
Transcript
Having all of his records. We assume that doctors are going to have them in front of them, and they don’t always. And I am known as the lady with the red binder.
With MG, he is very off balance. He falls a lot. Because of other medications, he can break his skin open very easily and not even know it.
So I carry a backpack that has all of the wound care, but it also carries this red binder. In the red binder, I keep everything. I keep his diagnosis, I keep every lab, I keep everything you can imagine that has to do with medical. When he’s been in a hospital, what doctors he’s seen.
I also keep all of his medications. I have a chart that I have on the computer that I keep all of his medications in alphabetical order, and I have the name brand and the generic brand. I have what he takes, how much he takes and what doctor gives it to him.
That has been amazing. When we go into doctors appointments, being able to hand him this chart instead of going through each individual medication.
And when the doctor says, “Well, has he had this test?” I open up my binder. There you go.
