‘Change or die’: Learning to embrace my new life with MG
In his book “Change or Die: The Three Keys to Change at Work and in Life,” Alan Deutschman presents his belief that humans are resistant to change. According to Deutschman, even when we…
Together — Mark Harrington
A Boston native, Mark has spent 25 years on the faculty of the Dallas Independent School District. A believer that what Hanna Arendt termed “the life of the mind” is the richest gift we give the young, Mark continues to find inspiration and joy in teaching. Mark has been published in The Dallas Morning News, The Boston Globe, and various professional publications. His classes have been featured on KERA, the local public television station. Mark knows the MG journey is not solitary. Blessed with wonderful, loving family and friends, he hopes his writing will assist others as they navigate life with myasthenia gravis.
Featured Post
Finding humor in life with myasthenia gravis
In the years since my myasthenia gravis (MG) diagnosis, I’ve learned to live with certain remarks that, though well-intended, can be hurtful. In conversations with other MG patients, I’ve heard about experiences like…
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Why quality education is crucial to medical research, advancements
On many weekends when I was a kid, my parents would take the family to the Boston Public Garden. We loved the iconic “Make Way for Ducklings” statues, inspired by the children’s book of…
Catching up with the sun: Fighting fatigue with myasthenia gravis
The short story “Rip van Winkle,” written by Washington Irving and published in 1819, ranks among the classics of American literature. It tells the tale of a man living in colonial America who…
Returning to ‘academic time’ helps me focus on the present
Many kids hate the end of summer, which brings a return to school. I was never one of those kids. I’ve been a nerd since kindergarten. I loved — and still do — the…
I’m troubled by the connection between homelessness and disability
The exceptionally hot summer weather in Texas, where I live, has made life for unhoused people more difficult than usual. It’s troubling to see so many people standing outside in the heat at…
Praying that I never lose courage
The limitations and frustrations that accompany life with myasthenia gravis (MG) have dominated my thinking the past few weeks. I wish I could say I’ve gleaned inspiration from the experience, but I can’t.
Myasthenia gravis does not make us powerless
As a historian and teacher, I often make connections between current events and the past. Because I also live with myasthenia gravis (MG), recent events called to mind a connection between the past…
Being honest is important when someone asks me how I’m doing
If I’m not careful, myasthenia gravis (MG) will take control of areas of my life I don’t want it to. I’m not referring to the daily exercise regimens or the employment challenges, but…
Reframing the question ‘Why me?’ in life with a rare disease
When I was diagnosed with myasthenia gravis (MG), I thought I understood the illness. The years since have been eye-opening. My MG has spiraled out of control several times. On those trying…
Do you believe in coincidence?
Each day we try to make sense out of seemingly random events. We do this at both an individual and societal level. It’s seen in the creation stories found in all cultures. The Egyptians…
How to enjoy summer despite MG and heat intolerance
On Oct. 10, 1935, the classic of American theater “Porgy and Bess” opened on Broadway. The show was not an instant success. Its first run ended after only 124 performances. Despite this,…
How Ted Lasso’s advice helps me in life with myasthenia gravis
I’ve learned many lessons about living a happy life. Among the most valuable is the ability to recognize the absurdities daily life can toss our way. I believe we can choose to laugh at…
