Julian of Norwich’s “Revelations of Divine Love” — which she’d originally recorded in 1373 — was first published in 1670. Still in print, this classic of Christian mysticism has influenced unknowable numbers of readers, myself included. I’d like to share how this book has affected my personal philosophy and…
Together — Mark Harrington
A Boston native, Mark has spent 25 years on the faculty of the Dallas Independent School District. A believer that what Hanna Arendt termed “the life of the mind” is the richest gift we give the young, Mark continues to find inspiration and joy in teaching. Mark has been published in The Dallas Morning News, The Boston Globe, and various professional publications. His classes have been featured on KERA, the local public television station. Mark knows the MG journey is not solitary. Blessed with wonderful, loving family and friends, he hopes his writing will assist others as they navigate life with myasthenia gravis.
Recently, while researching Irish history, I came across a commonly paraphrased quote of James Joyce that I’d forgotten: “Mistakes are the portals of discovery.” I think this resonates with me because living with myasthenia gravis (MG) has taught me how much human discovery comes not from soaring moments,…
Note: This column describes the author’s own experiences with several medications, including Ultomiris (ravulizumab-cwvz). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Ecclesiastes 3:15 (KJV) reads in part, “That which hath been is now; and that which is to…
Published in 1759, Voltaire’s satirical novella “Candide” follows the adventures of its protagonist as he travels the world. Along the way, Candide encounters the suffering, misfortune, and ambiguity that is characteristic of human life. A college philosophy course was my introduction to this masterpiece. I can visualize myself walking across…
Throughout history, we can find examples of people getting things wrong. In 1903, a banker said, “The horse is here to stay, but the automobile is only a novelty — a fad.” Science once accepted that cigarettes helped relieve stress and that germs were an idiotic concept. What we know…
Recently I noticed that expressing gratitude results in a change in my body. It’s hard to put into words, but I feel warm and peaceful. Something is different — better. I decided to investigate this phenomenon. I wanted to know if the symptoms of myasthenia gravis (MG) are…
When I attended a college staffed by Augustinians, five theology courses were required for an undergraduate diploma. Those classes helped me develop a mature understanding of religion and spirituality. Back then, I couldn’t know that one day I’d find a valuable lesson in the work of the four Evangelists, other…
In the Sept. 24 article “Y’all Vs. Ya’ll: Here’s How To Spell It” in Southern Living, the author Grace Haynes writes, “The South is known for its laundry list of unique, quirky, cultural sayings, like ‘Bless your heart,’ ‘Too big for his britches,’ and ‘Well, I s’wanee,’ to name…
In Greek mythology, Sisyphus, king of Corinth, offends the gods and is sentenced to spend eternity rolling a stone up a mountain, only to have it roll back down just as it reaches the top. The punishment doled out to Sisyphus is horrifying. How awful it is to…
Early this month, I spent the seven most stressful and challenging days of my life. Stress of that sort — financial and physical — can severely affect my myasthenia gravis (MG) symptoms. This column is my call for comfort to those in the MG and other rare disease…
As summer comes to a close, with cooler air just around the corner, it’s a good time to reflect on the past three months and share my experiences. I also have an important announcement. In July, the Republicans met in Milwaukee to nominate their candidate for president. In August,…
I’ve struggled with body image issues since childhood. I don’t remember a time when I didn’t believe there was something wrong with my body. When I was diagnosed with myasthenia gravis (MG), I viewed the disease as yet another manifestation of my body’s faulty design. I recently discovered…
For the past three weeks, my struggles with fatigue have greatly affected my life. I think others who, like me, have been diagnosed with myasthenia gravis (MG), as well as those who care for them, understand this experience. One minute life is rolling along and everything seems…
Recent Posts
- Loving someone with MG: What partners wish they knew sooner
- In public, my twin brother outsmarts MG with cold air and thick skin
- One troubling aspect of chronic illness is when I find myself losing empathy
- Most MG patients in US start therapy without lab confirmation of disease
- Even with myasthenia gravis, ‘you still have to get up in the morning’

