How I’m Processing Grief With Myasthenia Gravis
Today I despise myasthenia gravis. I resent the eight years I had to fight for a diagnosis. I’m jealous of my able-bodied family members. But most of all, I loathe having myasthenia…
The Whispered Roar
— Shawna Barnes
Shawna N.M. Barnes is a writer, accessible website designer, and disabled veteran living in Cable, Wisconsin, with her husband. She was diagnosed with seronegative generalized myasthenia gravis (MG) in 2018 after seven years of advocating for herself within the VA’s medical system. She hopes that through her transparency, bluntness, and no-nonsense way of writing about life with her disease that she can help others see that there is hope after an MG diagnosis. Sometimes, we just have to get out of our own way to live our best lives.
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When the storm clears: Healing after the crisis no one saw coming
I’ve been in survival mode for so long that I forgot what it felt like to just be. To breathe without panic. To cry without consequence. To feel without falling apart. But over the…
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