The Help I Especially Love From My Caregiver and Spouse
I’d been home from the hospital after my first myasthenic crisis for about two weeks when my husband looked at me as he’d never looked at me before and asked, “Honey, do you need…
Shawna N.M. Barnes is a writer, accessible website designer, and disabled veteran living in Cable, Wisconsin, with her husband. She was diagnosed with seronegative generalized myasthenia gravis (MG) in 2018 after seven years of advocating for herself within the VA’s medical system. She hopes that through her transparency, bluntness, and no-nonsense way of writing about life with her disease that she can help others see that there is hope after an MG diagnosis. Sometimes, we just have to get out of our own way to live our best lives.
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