How MG Taught Me to Put Kindness Before Judgment

Myasthenia gravis (MG) really enjoys hiding from other people. While a droopy eyelid is easy to observe, most of the other symptoms are not noticeable to outsiders. Weakness in the arms, legs, face, and other areas may only be detectable after someone with MG attempts to complete certain tasks.

We Have More Similarities Than Differences

As a part of the rare disease community, I interact with many people who have unique differences to what society deems “normal.” They may have ports or permcaths, feeding tubes or nasogastric tubes. Perhaps they are in a wheelchair or walk with a limp. They may have…

Why I Am Not ‘Better’

When I see someone for the first time in a while, they sometimes ask me if I am better. I have to pause before answering. Being chronically ill means that this is a long-term condition and that I may never be “better.” A chronic condition is a disorder or disease that…

I Shouldn’t Be Shamed for Using Disabled Parking

Myasthenics adjusting to reduced physical abilities must make lifestyle adaptations. To ensure the continuation of my tertiary studies, I’ve acquired disabled parking on campus. Applying for the placard dented my pride. I struggled for months before finally admitting to needing disabled parking. I could no longer walk the distance from…

Just Imagine What This Disease Is Like

You never imagine that your life could change in an instant. You never imagine that your “normality” can get turned upside down and spun around like it’s been let loose in a washing machine. You never imagine that you will be told by doctors that they don’t know what more…

People React to the Reality You Present

There are few things as complicated and challenging as interpersonal relationships. The older I get, the more difficult it is to stay in touch with those I once considered to be friends. Supporting someone with a chronic illness will never be an easy task, just as living with one is…