Shawna Barnes: Living your dreams with myasthenia gravis
Shawna Barnes, who lives in Wisconsin, was diagnosed with myasthenia gravis in 2018. On days with intense fatigue, one of her dreams is easy to make a reality.
Transcript
With my MG, I have bulbar symptom expression. So, like, the lower part of my jaw will get slack, and I have trouble eating. And it also affects my vocal cords. So there are days where I lose my voice. My husband jokes all the time that those are his favorite days.
So we joke about that, and I wholeheartedly embrace sloth mode. There are days where I am moving slower than a sloth. You know, I’ve got, you know, a cup right here that says “Follow your dreams.” Well, sometimes following your dreams is taking a nap. And I just go with it.
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