If you’ve read my diagnosis story, you know it took me a decade to find out I have myasthenia gravis (MG). But why? Didn’t I see professionals? I did. Weren’t they familiar with MG? They were. Were my symptoms unclear? Absolutely, or this journey wouldn’t have been so…
My Bitter & Best Friend: MG — Sarah Bendiff
From the heart of North Africa, Sarah Bendiff shares her journey with myasthenia gravis. Diagnosed in 2019 after 13 years of searching for answers, she had to step away from her physics studies as her body resisted treatments. The digital opportunities that arose during the COVID-19 crisis in Algeria allowed Sarah to rebuild. Through digital marketing and content creation, she found strength and resilience, channeling her creativity to thrive in a remote, connected world.
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My sister has been accomplishing incredible marathons and runs ever since the two of us failed a running attempt during an event with our yoga club. I can’t help but feel both proud and jealous of her accomplishment, but it hurts even more when I tell people I was there,…
Even though my symptoms started early, I couldn’t make a strategic plan for higher education because I wasn’t diagnosed with myasthenia gravis (MG) until my second year of college. I’d chosen my dream career: physics. You might think of Stephen Hawking as the perfect example of a disabled person…
Ahead of every family reunion, plan, and event, I fear saying the famous “I’m tired, I can’t” — not because of how it might affect me, but because of how others might react. Normally, I’d be “selfish” and preserve my energy, but in these moments, I feel like I’m in…
It’s been five years since I was diagnosed with myasthenia gravis (MG), an autoimmune neuromuscular disease. MG makes me feel tired and short of breath, and sometimes I struggle to speak clearly. It feels like yesterday when I was diagnosed, and I believe I still need to know more…
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