A chronic disease like myasthenia gravis (MG) can make daily living more of a juggling act than it already is. But with a little knowledge and some planning, you can learn to not only live with MG but to thrive.
Deciding whether to share your MG diagnosis at work can be tough — but you have rights. Federal laws like the ADA and FMLA protect you and allow for reasonable accommodations if your symptoms affect your job. While disclosure isn’t always required, being open may help you get the support you need.
Flare-ups in myasthenia gravis can be unpredictable, but tracking triggers and tuning into your body may help manage symptoms. Daily habits and a response plan can support stability and improve quality of life.
Traveling with myasthenia gravis can be challenging, but planning ahead helps. Focus on managing fatigue, securing travel insurance, and confirming accessible accommodations for a smoother, safer trip.
A healthy diet that supports good nutrition can help slow decline in muscle health, improve the body’s strength, and give a boost to energy levels in people with myasthenia gravis.
Fatigue in myasthenia gravis is a deep-seated lack of energy that can make it harder to meaningfully participate in daily life, but there are strategies that can help.
There are a few different types or classes of medication that may be used to treat myasthenia gravis. Each has a different way of working and method of administration.
Myasthenia gravis patient advocate Shawna Barnes says her journey didn't start out with her deciding to be a voice for people like herself, but now she finds herself leading the charge to pave the way for others.
While MG care is usually led by a neurologist, most people with MG will see many types of specialists depending on their symptoms and progression of the disease. Coordinating care among these different providers can be a challenge.
While a myasthenia gravis diagnosis during childbearing years can be concerning, it may be reassuring to know that, generally, if the neuromuscular disease is well controlled, pregnancy is considered to be safe for patients.
Regular exercise can help to improve muscle strength and balance, alleviate fatigue, and boost overall quality of life, while physiotherapy can help people manage their myasthenia gravis symptoms.
Although living with a chronic disease like myasthenia gravis can take a toll on your mental health, effective coping strategies such as lifestyle changes, therapy, and support can help you manage your emotional well-being.
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